Hi
So excited I found this particular topic on the forum. I have neck Lymphedema following surgery and radiotherapy. I found myself in a real state in the middle of the night recently as it became so tight and restrictive round my neck that I thought I could not breath and mouth was so dry. Ive been assured that my actual windpipe was not and is not restrictive so I feel better already. But in the dark whilst everyone else is sleeping I found the whole experience really scary. I have started some treatment such as MLD, sweets to help with dry mouth, special pillows to keep me slightly elevated. How about using acupuncture . Has anyone any experience ?
Hi Germolene
I'm sorry to read that you have developed lymphoedema following surgery and radiotherapy. I don't have any experience with either this or acupuncture, but I noticed that your post hadn't had any replies yet.
It might be an idea to also join and post in the head and neck cancer group as you might then connect with others who have had the same post-surgery/radiotherapy problems as yourself.
If this is something that you'd like to do, clicking on the link I've created will take you straight there where you can then join and start a new post in the same way as you did here.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
