Has anyone with breast lymphedema had a mastectomy with reconstruction?

FormerMember
FormerMember
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Hi, I was successfully treated for breast cancer last year. I had a lumpectomy with lymph node biopsy in March followed by radiotherapy in June. I am now taking Tamoxifen as it was a hormone receptive cancer. Unfortunately I developed lymphedema in the breast in September. 

Due to family history I was offered genetic screening & I have a faulty BRCA 2 gene so have now been offered risk reducing surgery. This would be a double mastectomy with reconstruction if I wanted it but I have been told by my breast surgeon that my lymphedema could affect the sort of reconstruction I can have & the healing process. I'm waiting to see a plastic surgeon but wondered if anyone on here has been in a similar situation & if/how the lymphedema affected them so I know what questions to ask at my appointment.

Many thanks. 

  • Hi

    I've just 'bumped' your post in the breast cancer group and hope you'll get some response there.

    I've had a quick look through previous posts here which mention having a mastectomy but unfortunately their lymphoedema began after the mastectomy not before.

    x

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  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much x