Is it normal that I am so tired... Even before any treatment has started. I spent a few hours at my sisters and had dinner and didn't have to do anything... but as soon as I got home I had to have a kip.
Hi Spanglesx, with my bone marrow cancer my neutrophils are low, my platelets are low and my haemoglobin is also low so my red cells don't carry enough oxygen round my body therefore I'm anaemic, suffering from fatigue, weakness and shortness of breath. I constantly doze off all day long.
I think that a lot of people here that are having chemo suffer greatly from fatigue but fatigue goes hand in hand with cancer.
I dosed off quit often waiting for treatment and on immunotherapy, but did have problems sleeping of a night. Now cancer free, I sleep well from 11.30pm till about 4am ??. Hang in there lovely alot of us have some form of sleep issues as Tvman said. Hope you enjoyed your dinner with your sister. X
Thanks Moi.... I had a lovely time but keep getting waves of sadness and am so sleepy. The lump on my neck is affecting my shoulder, ear and back of neck. Also I just want to fast forward to the point that cancer isnt in my head 24/7 and I can really enjoy the quality time with my loved ones. The only other way I can describe it is I wish I could take my head off and put it on a table so I can just stop thinking. I know it's all part of the acceptance process.. But it's so hard. X
I know what you mean, I use to sometimes at first feel on my own even when I was with people, I'd have all kinds going through my head. Once I got into a new routine when treatment started things started to settle down as it became my new normal. X
Hi Spanglesx, I hardly know anyone who's never had issues with fatigue, my cause is obvious, the complete halt of all my testosterone production, which on top of the fatigue, takes away your strength and impacts your memory, but there will be a way through it for you too, the No1 way through fatigue is exercise, do whatever things you enjoy, as often as you can, and slowly build on it, things will get better, with the added bonus the exercise releases your feel good hormones, which reduces your anxiety, which is a big reason behind poor, irregular sleep.
Spanglesx, if you can visit your local Maggies centre, or access them online, they do a weekly relaxation course, which has helped me enormously, with anxiety, sleep and a couple of neurological issues
Thank you Eddie, we do not have Maggies in my area but the macmillan drop in at the hospital do a relaxation morning....which I will check out. I'm currently handling sleeping at night with sleeping tablets as I can't bear waking up wide awake at 1am feeling totally alone x
Totally understand my friend lying awake at silly o clock, after a diagnosis like ours is not a place any of us wants to be. Spanglesx when I couldn't get to Maggies, I did it online, the difference is negligible, the results fab, I should have mentioned it helps with short power naps, without sleeping, so doesn't work against the goal of a decent night's sleep, I remember how alone, no matter the company, those early morning thoughts made you feel, you will find a way through them.
