I've been on this forum for a few weeks and I have dropped off most of the threads. I try to be engaged but I'm finding it difficult.
Treatment started 8weeks and my life has been a mess. I haven't had a full week at work and I hate it. When I am at work it takes me ages to get focused. Side effects have been horrendous. To date I have lost 10kg. I've had chemo stopped for a cycle and I am still suffering. My kidneys have been under performing and I've numerous IV infusions. I can't take oral minerals as it creates digestive issues. My sense of smell is heightened so I can taste the cleansers and lotions that have been used elsewhere on my body, resulting in nausea and going off food. Cornflakes are my friend. I've had meds to counter act meds that make me feel sick but causes other issues. I somehow managed to get a lung infection, which the docs are attributing my breathlessness. 5 days after the last antibiotic I've still got it.
So I called the Emergency Oncology unit this morning and it took 45 mins for someone to answer and when I raised this I got told that the team were going through a handover. I have to ask is this an acceptable response?
My tumors are growing and nobody gives a crap and I am sick of it all. Im getting to a point I want give it all up.
Hate my life!!!!!
Hi Eddie
I've always had something to do. Whether it is hobbies or work, but I must admit I have enjoyed working.
Yes I've tried Greek yoghurt but I like set yoghurt whether it is normal or Greek but it doesn't settle mine. I do like the idea of broth though.
Curry is now out for me 
I woke up this morning with stomach ache, breathlessness and the runs (again).
Been to see the new Oncologist. Good news is he was brilliant. He went through all the scans and explained everything.Bad news the treatment isn't working and the cancer is worse. Proposed a new tre
ment that may be effective but need to resolve current issues first so I am in the Emergency unit having fluids and magnesium being pumped. I may even get another CT scan done to include a brain scan.
All fun and games!!!
Love to you both
Sledge x
Hi Sledge, I always enjoyed being busy, but now I know sometimes I must rest, and broth has always been my go to when my stomach is sore, and I hope it works for you.
Im sorry you can't have a curry anymore, and for how you feel in the morning, it sounds like AGE, what have your Dr's said?.
From reading your posts my friend, it doesn't seem your eating enough, though I hope your drinking plenty.
I'm pleased your happy with your change of oncologist, that's good news, but I'm sorry to hear your present treatment isn't effective, but good to hear there's something else for you, your time in the EMU, gets you sorted soon, for your new treatment to begin, and your scan(s), bring you some good news, I will have everything crossed for you my friend.
love Eddie and Sheila xx
Hi Fleabane
Thank you for your thoughts. I have a chicken soup recipe with the carcass used to make the stock too. 
Appreciate the thought. I use a similar recipe for a turkey soup too. Roasting the bones makes a difference to the flavour 
Appreciate the thought and hugs and send them back to you. Happy to chat anytime.
Love
Sledge x
Hi Eddie
There's hope it maybe more effective and prolong my life. Happy to have a go.
They found a lesion and will treat it with steroids so if they confirm it, treatment will have started early.
The team have recommended I talk to a Nutritionist while I am here to discuss ideas, so that may help. Today breakfast was cornflakes and 2 slices of toast. Lunch was roast chicken with mixed veg. Skipped the potato and I piece of tinned pear. All very lovely but now feeling sick and taking appropriate meds.We will get there eventually. I am aware that this is an important issue. Alot of it is related to the treatment, so it may change.
I'm sad to hear that you going the liquid/tube route, but I'm know that swallowing can be really difficult.
Sending all my love and hugs to you both.
Love
Sledge x
Hi Sledge, it will be more effective my friend, and treatment stating early gives more cause for optimism, a lesion is so much better than a tumour, l have 10, and I'm on the wait and see treatment, the same treatment for my recently diagnosed gastric hernia lol.
That's good your seeing a nutritionist, even if you only come away with a handful of good ideas, it's worth it, and it is a slow process the constant adjustments to what you can eat, as your body and meds change but you will get there, I like to add a little prune juice to water at meal times and rest for a little while after eating about half way between laying down and sat upright works for me.
Thank you, but I can still have a meal if I'm careful what I'm having, and M+M, minced or moist allows plenty of options, small mouthfuls, sipping between them and lots of chewing lol.
I also had a food intolerance test, many years ago,before I was I'll, luckily nothing came up, but maybe worth considering for you.
love Eddie and Sheila xx
Hi All
Well I've finally hit the wall and can say I'm depressed. In the last 7 days I've been told my cancer is worse. I now have confirmed brain mets as of Friday. This week I went for another CT scan and they have possibly found more tumours in pelvis, near the skin and in depth but as yet this is unconfirmed.
I finally feel like I am on a hopeless journey today. The cancer is so aggressive and I am not sure that I will be here this time next year. My first treatment has failed. I'm now starting another one today. So far cancer is handing my ass on a plate back to me and I hate it.
I'll give myself a couple of days to process it. Hopefully no major side effects between now and then.
Don't mind me. I just needed to vent today and let the tears slide for awhile.
Sledge x
