I've been on this forum for a few weeks and I have dropped off most of the threads. I try to be engaged but I'm finding it difficult.
Treatment started 8weeks and my life has been a mess. I haven't had a full week at work and I hate it. When I am at work it takes me ages to get focused. Side effects have been horrendous. To date I have lost 10kg. I've had chemo stopped for a cycle and I am still suffering. My kidneys have been under performing and I've numerous IV infusions. I can't take oral minerals as it creates digestive issues. My sense of smell is heightened so I can taste the cleansers and lotions that have been used elsewhere on my body, resulting in nausea and going off food. Cornflakes are my friend. I've had meds to counter act meds that make me feel sick but causes other issues. I somehow managed to get a lung infection, which the docs are attributing my breathlessness. 5 days after the last antibiotic I've still got it.
So I called the Emergency Oncology unit this morning and it took 45 mins for someone to answer and when I raised this I got told that the team were going through a handover. I have to ask is this an acceptable response?
My tumors are growing and nobody gives a crap and I am sick of it all. Im getting to a point I want give it all up.
Hate my life!!!!!
Hi Sledge, I've never tried protein shakes my friend so know very little about them, but have been working on smoothies, as that is where dysphagia will take me, so it will be good to have a couple of recipes that are healthy, tasty and don't cause any issues, when that time comes.
I'm glad you get enjoyment from driving, is that the driving you like, the independence it gives you or that it keeps you connected to many of the important things in life. and I know what you mean about not being able to drive, it will be a dark day indeed.
The good old meds collection, just 6 months ago I was having 1, 3 monthly injection now it's 23 pills and potions a day lol.
Have a lovely time, and dinner with family, and maybe a little white wine.
love Eddie and Sheila xx
Hi Eddie
Sorry I crashed out on the sofa yesterday for a long time, so I never came back to the forum. I'm finding I sleep a lot.
Protein powder can be added to smoothies too. It's an alternative to getting protein into the body.
Ive always loved driving even before I could drive. The independence is a bonus.
Dinner didn't turn out too well. I had a bowl of cereal and cucumber sticks, which were disgusting,but they did settle my stomach.
Back at work today. Bit difficult. Everything is taking some effort,but I'll get there.
Good news today. I will be seeing a new oncologist tomorrow.
Hope you and Sheila are doing ok.
Love
Sledge x
Hi Sledge, no need to apologise my friend, if you need to sleep then do so, but maybe not while you're driving , I have to say I'm impressed your still working, and can find the energy to do so, you must really love it so much to keep at it and imagine it's so important at this time for your well-being.
Was in healthcare for 15 years, many in palliative care so made all sorts of smoothies and shakes, but never added protein of any sort, maybe I'll need to reconsider. And if cereal and cucumber settled your tummy, job done, you did better than me, just yoghurt, despite feeling ok and having a lovely dinner made for me, which I will have today.
That's wonderful news you have a different oncologist, I will have everything crossed you find trust and confidence in them.
Sheila and I are ok, I spent Saturday night in hospital with proctitis issues, but all good now, time for yesterday's leftovers yummy.
love Eddie and Sheila xx
Hi and welcome. I was only diagnosis in October and it was un expected, I haven't really got any advice there is loads on here with better, I send you abig virtual hug and just say do what you need to get through the day scream shout cry dance in the street laughing you will eventually find a way of living with this shit.
Hi Sweet21Pea
Thank you for your thoughts. It's always appreciated.
Sledge x
Hi Eddie
The work ethic is genetic from both sides of the family.
I can stomach plain yoghurt with garam masala and a little salt instead of fruit yoghurts but it's not something that would suit everyone. Tonight's menu will be a slice of chicken and ham, with a handful of lettuce & cucumber and a maybe a slice of bread.
Its my son's 21st birthday on Wednesday but he is having a do in the garden on Sunday, so I am planning food & cake for him. Lamb curry, cauliflower, potato and carrot curry, rice and naan bread. Followed by Lemon & Blueberry sponge cake covered in blueberry buttercream.
It will be my last cake for him but I won't let me down.
Hope your leftovers were good.
Love
Sledge x
Evening Sledge, I've always hated doing nothing, so work was so good for me on many levels, I only had, not including holidays and illnesses, 3 weeks off before retirement.
Have you tried real Greek yoghurt, it really settles my stomach, as well as my pylorus and duodenum, which are being damaged by treatment, and as curry and yoghurt go well together, I'd be happy with your suggestion, and your simple salad.
Your curry is a little unusual, is it a family favourite, sounds delicious though as does the cake, I love baking with my eldest daughter, and for a long time now, she's coming up 52yo, and don't you wonder where all the time has gone, I hope its a huge success for you my friend, I'm sure it will be, and Poppy had the leftovers, I didn't want to irritate my Bowel, so a bowl of broth for me, and maybe a little yoghurt before bed.
love Eddie and Sheila xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007