Hello

Hi Piff, welcome to the Incurables group, lovely to meet you but of course I wish we'd met elsewhere. To be still around after 4 years having been diagnosed with stage 4 cancer is some achievement. Hope you can still say the same in another 4 years and more! Meanwhile Piff, keep on living and enjoying life. 

I was diagnosed with a bone marrow cancer way back in 2015 and thanks to 2, sometimes 3 treatments a week, every week, since then I'm unbelievably still around. 

I'm sure others will come on to welcome you soon enough, there are lots of lovely caring people here,

Tvman x 

Hello Tvman

Wow. Well done for coping with so much treatment, that is a lot. Do you have to go into hospital every time?

Yes I am finding that for a year or two people thought I was going to die and were extremely kind to me. Now I'm in an odd no man's land, a plateau, where no one seems to know and I have to steer myself. Sometimes that's fine and sometimes I feel tired. 

thanks for your message

Piff

Hi Piff, thanks for your concern. No I don't need to go to hospital, the treatments are by way of self administered injections. I get them sent to me, sometimes 4, 6, 8 or 12 weeks' worth depending on results of bloods taken at hospital. 

I was the same as you at the beginning, everyone including me thought I was going to die before my 60th birthday (I was diagnosed when I was 57, I'm now 67 almost 68.) 

I feel like I'm in limbo, my bloods haven't been good for 10 years,  red cells are always low, white cells aren't always good and platelets have been low for 3 years now. It's just a matter of hanging on in there and trying to live as normal a life as possible and enjoy myself. Just like you I feel so tired and could sleep all day long. 

Tvman x