Hi,
Just wanted to say hello. I've been hanging out on the bowel and endometrial forums for a while now, but I've finally made it over here, although I hope I'll still be here for many years to come.
I'll update my profile shortly but to cut a long story short, I was diagnosed with bowel cancer after a routine FIT screening in summer 2024. That was successfully treated by a surgical resection, but a preliminary CT scan also flagged up a thickened uterus. This was followed up after I'd recovered from the bowel surgery, which revealed I also had endometrial cancer. So I had more surgery at the start of 2025 - a hysterectomy and oophorectomy - followed by 27 sessions of pelvic radiotherapy and two sessions of brachytherapy.
Unfortunately a follow up CT scan showed that there was still some endometrial cancer in my pelvic lymph nodes. at which point I was told that the cancer would now be considered as incurable but controllable. I started hormone therapy in September - a daily tablet of Letrozole - and have just been told on my three month follow up that the latest CT scan taken just before Christmas shows that the cancer is getting smaller as a result.
I'm lucky in that throughout all of this I've actually felt perfectly OK apart from sone mild side-effects during and after the radiotherapy, and the occasional hot flush as a result of the hormone treatment. I'm hoping that it stays that way - if the hormone treatment should stop working then there are still chemotherapy and immunotherapy treatments potentially available to me.
Hi P00hsticks I am sorry to hear that you have had to join the incurables. I have been on here for about a year now and find everyone so friendly and supportive. I hope you will too. Fingers crossed that you have a stable mable for many years to come. I have oncology appointment tomorrow, hopefully mine is still stable too. Welcome.
Lee x
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