2nd Round coming up

Hi

Fatigue, is part off this ,journey,  and can effect everyone on a different scale.

For me  had to focus on  doing one job a day , if  nothing   else,  i also live on my own, and have never been one for just siting about.

You have to do what is  best for you, one job i focus on,  was chopping  an onion, so simple in days gone by, took me an hour, i did  it, felt good then was shattered. 

You   will find a way your way.

Fatigue is a big issue for me  As Ellie has said focus on one task , if I’m able to do more then great if not then I rest. 

Some gentle or short bouts of exercise can help, even just a few steps outside to get some fresh air and get muscles moving 

I totally agree it is a feeling like no other mainly because it doesn’t resolve with sleep like normal tiredness 

BUT it will improve, I’m on maintenance treatment at the moment and still fatigued but not to the same extent as when on chemo 

Be kind to yourself and focus on ways to keep life as simple and easy as possible 

Lucy xx 

Hi Ellie

Your replies are very encouraging and make me rethink things so that I seem to be able to "cope" a little better. I am still finding it really difficult to accept the situation I am in. 

JD

 Hi glad it helped a little.

Sorry you are finding,  it hard to accept, the situation you are in, every one is so  different.

I was different this is what I have been 

dealt and i have to get on with it, it has been hard and i have had quite a few problems, but pull my big girl knickers up as far as I can.

As it  is quiet early days for you, give your self nanbit more tine, and it will be easier i am sure. x

I have accepted to an extent, I'm just finding it hard to get rid of the feeling of impending doom. Did you have the feeling that the word incurable meant an immediate end? Does that feeling eventually take a bit of a back seat? I am sorry if you prefer me not to address you so directly but hopefully you can assure me it's all 'normal'.

Thank you for your patience and caring.

JD

You ask anything.

I have never  ever thought  of impending  doom, incurable thats it, so are  a lot of other conditions, or go out and get run over by a bus.

If  get to next March will  be, 10 years since I was diagnosed, so not bad  going,

Do not worry you can ask me anything, though i will always   be truthful with my replies

 x

Hi JD 

Sorry to hear you feel fatigued/tired beyond reason.

I know that fatigue but also have fibromyalgia.

I resent that I have to rest & sleep more.

It just happens .

I nod off unexpectedly for hrs, too much 

I don't want to.

Its a weird sleep like being in a coma..

I wake feeling more awful .

Also live alone don't like it...no help.

I got the impending doom feeling when told terminal too.

Mine is back, very symptomatic,

prob no treatment available now , see oncologist soon,  since radiotherapy stopped early Feb.

It didn't buy time, but alleviated symptoms a good bit..

However this group bucked me up, better than any medic, hang on in  have a good day 

PT ️

That is so encouraging thank you so much. I hope I will be able to say the same further down the line. You sort of put that in perspective.

Thanks once again

JD

x

Hi P T

I am so sorry to hear all this. Your symptoms must be dreadful to manage. I really hope that the news when you see the oncologist isn't as grim as you think it will be. I agree about this group though it makes you believe there is some hope and some better days to come.

Take good care of yourself

JD

Thanks JD 

It was more to encourage you that you're not alone in the fatigue & doom phase, 

You were certainly not being pathetic.

Are you having a 2nd go at treatment on Friday?

If so wish you all the best.

You are right in saying the less you do the less you want to do.

Its a fight but energy creates energy.

Not easy but we try.

Take care 

PT ️