2nd Round coming up

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Hi Everyone

I hope that you are all coping with what life is throwing at you. It is encouraging to see that fatigue is a common symptom of treatment but does anyone agree that it seems to be a fatigue like no other. I feel as though I could sleep the clock round and still be tired beyond reason. I do sometimes wonder though if it is just general mojo loss. As I am still quite short of breath it is hard to get going and then it's the old vicious circle the less you do the less you want to do. Anyone got any ideas? I am on my own so it's not like I have anyone running round after me. Any thoughts welcome even if you think I'm just being pathetic.

2nd round on Friday Fingers crossed

Thanks for being there 

JD

  • 2nd treatment was last Friday thought I was going to get away a bit better but it was not to be. I can't get away from the bathroom, can someone please explain how you can have constipation, piles and the runs all at the same time? 

    Yours bathroom tied

    JD

  • Oh no poor you, was it chemo?

    What you are describing is a thing.. read this below Point down tone1.

    I've been there it's awful .

    Keep drinking fluids & use softeners is a must..

    They don't give you diarrhoea only soften impaction.

    Obv the piles is from straining when its constipation.

    Do Take care

    PT 

    https://www.healthline.co

    m/health/diarrhea/paradoxical-diarrhea#:~:text=in%20your%20colon.-,Takeaway,for%20a%20week%20or%20more.

  • Thank you all help is greatly appreciated.

    I have tried allsorts and nothing seems to work. 

    JD

  • Hi J Daniels

    Sorry you're going through this. I do hope it improves soon!

    If not, I think it would be a good idea to get in touch with your support nurse and let them know this is happening. They will have dealt with this problem before, and will have advice/extra medication/ a change to your treatment dose that should help you. If you don't get success that way, try your GP/practice nurse. You need to get on top of this! 

    Fingers crossed

    xxx Kate

  • Thanks for that but getting through to the gp is pretty much like impossible. I don't think I have a particular support nurse but I can call the helpline if it doesn't improve. I just hate bothering them.

    JD

    x

  • It isn't bothering them! That is what the helpline is for. 

  • Hi JD, I agree with Kate, you definitely need to tell your Team what’s going on.

    I didn’t think I had a dedicated nurse either, early on, but it turned out she had been sitting in during consultations with my oncologist for over two months! She was just introduced by her first name and wasn’t wearing a uniform but it turned out she was a McMillan Specialist Nurse! It might be worth asking your Oncologist or chemo nurse if you have one. It can make such a difference to have someone to turn to!

    I hope you get some relief soon!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi JD,  sorry to hear that your second treatment is giving you all these problems.  You definitely need to contact your team.  There must be something they can give you.  Sending you gentle hugs.

    Lee 2 x

  • Hi Leelaooo

    Agree JD needs to contact, & rely on contacting their team .

    Hope you're better now with that JD Blush 

    Funny you said gentle hugs btw . 

    My wonderful step sister I see only periodically gave me a huge hug on  Saturday last & cracked my rib/s... 

    I have osteoporosis , fibromyalgia as well as tc. 

    Boy was it painful.

    I'm on lidocaine patches etc 

    Gentle is necessary!!  

    Sending you (all)

    wishes for a good weekend 

    PT Rosette️ 

  • Oh no PT sorry to hear about your ribs.  I have the mets in most of my bones and spine is really fragile.  My husband is too scared to hug me in case he does the same a bit rubbish is would say.  I think cracked ribs take ages to heal.  So now I am sending you an extra gentle hug x

    Lee 2 x