Struggling with diagnosis given this week

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Hi, I am new here. On Monday I went for an appt supposedly to get my chemo plan, which I was told I would have before surgery, only to be told it had spread and was now stage 4, untreatable. I got a card for the nurse specialist’s number, which I’ve left 2 messages on but no response. I don’t know how to process it. I haven’t told my kids. I came here to the MacMillan site to look for any advice or support for coping. It will be managed with medication but that hasn’t started yet & I’m desperate to start something to feel like I’m fighting it in some way. Sorry for dumping like this in a first post, I’m really struggling and don’t know what to do. Thank you 

  • Mine are older, 17 and 20. Were you offered radiotherapy via the NHS? I was told radiotherapy would only be available privately. Sorry if that’s prying, you don’t have to answer. I have not heard of those places but I’ll look. I live in London. 

  • Yes I had radiotherapy to my breast area and lymph nodes on nhs after my mastectomy. I live in Norfolk 

  • Have you been offered radiotherapy fir secondaries? Is that what you meant? 

    I am in King's lynn 

  • Everyone ignore above comment I actually replied to myself 

  • Hi Sparkles, so sorry hear you diagnosis,  it's hard telling the family especially the children. I'll just say be kind to your self, tired sleep, hungry  eat, scream if you feel like. Hang in there lovely were all here for you. Keep posting. XX

    MOI

  • Sorry for intruding RoRo and Sparkles, but that's horrendous RoRo, no radiotherapy on the NHS? Mrs Tvman had 5 weeks, 5 times a week of radiotherapy on the NHS-no charge. I wouldn't like to guess how much that would cost. Stunned.

    Tvman x

    Love life and family.
  • Hi RoRo, I'm jumping in as well, I was told no radiotherapy as the mets were too close to a few viral organs, so I was put on immunotherapy,  a long time 5 years but, cancer free know. There is always HOPE.  Its disgusting  having  to pay for radiotherapy. Can I ask were you are ? I'm in Liverpool . Be kind to your self. Take care. XX

    Moi

  • Hi, I’m in London. He did say it would not prolong life, only impact quality of life. I was not offered immunotherapy. Amazing to hear your change! 

  • Press on my picture and you can read my profile,  have you done your profile  yet. It just your record of treatment and how you feel about it, it also let's others know what is you are dealing with. You don't have too though. XX

    MOI

    • Hi Sparkles, I too have secondary breast cancer in my lungs and back. Diagnosed in April 2021. I take letrozol, ibrance and denosumab injections.   I am doing very well and feel I'm living as normal a life as possible,  which is the aim.  Hope you manage to cope with your treatment  plan without too much stress.   Wish you all the best