Struggling with diagnosis given this week

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Hi, I am new here. On Monday I went for an appt supposedly to get my chemo plan, which I was told I would have before surgery, only to be told it had spread and was now stage 4, untreatable. I got a card for the nurse specialist’s number, which I’ve left 2 messages on but no response. I don’t know how to process it. I haven’t told my kids. I came here to the MacMillan site to look for any advice or support for coping. It will be managed with medication but that hasn’t started yet & I’m desperate to start something to feel like I’m fighting it in some way. Sorry for dumping like this in a first post, I’m really struggling and don’t know what to do. Thank you 

  • Welcome RoRo....notice all these replies...this group of people are amazing.

    I like u jumped into 'incurable' which floored me, didn't see that coming. But the support and love in this group has been such an uplifting experience.

    Everything said i agree with. Nothing much I can add.

    You'll note we have a gardening, book, hobbies feed too. I love seeing what people are doing with their lives and it encourages me to do things instead of brooding when I get so tired or  in pain.

    Also on here we have people going through different types of cancers, different treatments and the support and advice is shared from the people who are truly experiencing this. 

    It's a scary time but I know that this lot of nutters will be with me to make me laugh and hug me when I cry.

    Welcome sweety and all the very best for the future

  • Thank you. I will definitely explore the site more now. I can see how wonderful everyone is Blush

  • Thank you for taking the time to write, it really feels like connecting into something positive. 

  • Sorry you have not only had such devastating news, but that you also received it out of the blue with little support. Everyone on this forum has a stage 4 diagnosis. I am hoping you misheard ‘untreatable’ - stage 4 is often described as ‘incurable’ but there are often treatments, and many of us live fairly normal lives. If you are able to share a little more of your diagnosis and the medication that is proposed, you may find others with similar diagnosis and treatment pathway.

    It is an awful shock. My own stage 4 diagnosis was delivered over the phone as an “oh and by the way” when discussing a scan that had been done for other reasons towards the end of the treatment for my primary cancer. I thought I was going to be discussing the final steps, only to find the ladder had been kicked away. I don’t think I will ever forget that day. However it did get easier and I am sure it will for you too.

    I have been careful never to ask for a prognosis. I don’t want a “use by date” sitting over me, nor is there ever much certainty in these things. My advice would be to take it one day at a time. I appreciate you need to think about your kids but hopefully there will be plenty of time for that. For most of us this isn’t an instant death sentence. If you saw me, or many of the others on the street, you would not immediately think stage 4 cancer.

    Wishing you all the best.