Well, I haven't posted here for a while because as some will remember Mrs Tvman was diagnosed with rectal cancer. After 5 weeks of radiotherapy and chemotherapy and after a further 2 week wait until the results I'm delighted to say that her tumour and lymph nodes have disappeared completely,. Also no sign of cancer in the wall of the rectum, so NED . She will be having regular 3 week chemo for while which she sees the result as a hollow victory. I'm telling her that some people on the site would give their eye teeth for such a result. I think she's gradually coming round to that state of mind.
As for me I've been in the Lagan Valley hospital because of extreme jerking and inability to stand as my legs were buckling below me. I went in on Friday 6th October and got out on Monday 16th October. During that time my mood was so low and I feared I would die in there. Happily I was allowed out by the liver specialist. I'm jaundiced with slightly yellow skin and the whites of my eyes are definitely yellow. The focus now is to get my liver working properly and to start with a withdrawal of a drug that I am taking to lower the ferritin (iron) in my body due to my haemochromatosis (known loosely as the Celtic curse) that is caused by a mutated gene - H63D - that both my parents must have had but were unaware of. This mutation causes levels of iron to be deposited in major organs such as the heart and the liver. It's a complicated picture as you may well understand.
Take care everyone
Tvman xx
Hi TEW30
I have .sent you a friends request, I would be happy to chat with you do if you accept my request we can message separately to this thread.
I would say everyone here was brilliant when I was diagnosed and they have continued with the support throughout they a all a great bunch.
Hugs to everyone for now
Donna
Hi TEW30, so sorry to hear about your diagnosis, it's clearly been a massive shock to you. There have been loads of people in this group who have been given the treatable but not curable diagnosis but don't even consider throwing in the towel yet because scientists are coming up with new treatments that can keep people alive for years and you never know the day when a cure may be found. The media is always reporting new developments and cures.
As for me, I was diagnosed with an incurable bone marrow cancer in March 2015 and here I am, 9 years later thanks to weekly treatment and now, with this new problem, I'll be getting weekly treatment for it too. It may not be for long, we'll see. I have everything crossed for a good result and I have everything crossed for you too.
Take care TEW30
Tvman x
Hi tvman, thank you for your kind reply, I will try and pick myself up, it's been much harder than the previous times because there's no end to treatment this time but I owe it to my partner and my family to try my best, it's the fear of the unknown I find difficult and feeling like I've lost my future but I will try and have a little more faith, wishing you and your wife all the best and hope you can beat this new problem.
Tracy x
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