New to this group.. but not new to the incurables!

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Hi, just wanted to introduce myself and my story really. 7 years ago I was diagnosed with Gallbladder cancer, I had a liver resection done and 6 months of adjuvant chemotherapy. All we t well but during that time I was diagnosed with papillary thyroid cancer so I went on to have a total thyroidectomy and the lymphs removed on the right side of my neck. Again it went well and from 2017 until 2020 I was cancer free, no evidence of disease. 

In September 2020 my scan showed I had something in my abdomen and also an ovarian cyst so the decision was made to go for a full hysterectomy and also abdominal surgery at the same time.

The cyst wasn't a cyst it was a Mucinous ovarian cancer tumour, but the surgery was the cure for that. The abdominal surgery pathology showed I had actually 3 tumours that were all gallbladder metastases. So I went on to have another 6 months of chemotherapy.

In 2022 a other tumour popped up near my bladder so I had another surgery, again it was gallbladder cancer. Incredibly and surprisingly, the last tumour removed was surrounded by what I have been told was a desmoid tumour and my surgeon said my body is trying to fight back!!!

So yes, I'm incurable sadly there is no cure for gallbladder cancer but I'm lucky, I'm on year 7 and I feel absolutely marvelous, yes I've had a lot of surgeries and treatments but I'm still standing and still trying to live my best life.

  • Hi Sistermoon, great to meet you, and you would be correct I am a '69er like you! Yes my first diagnosis was when I was 46, Id just had enough of indigestion (suffered for years), I was lucky my GP Roflamined me and sent me for an ultrasound of my gallbladder. It was 'chocka' (their words not mine) and needed to come out, I got a call 8 days later to tell me they'd found a T2 adenocarcinoma and the rest they say is history Rofl

    This group has been a wonderfully welcoming place today and I'm grateful to find you all, in my case it's been a pretty lonely journey as GBC is pretty rare and usually affects much older people who (no disrespect) didn't tend to use social media 7 years ago.

    I look forward to hearing more about the club's you have (particularly the book club) 

    Thanks again for your kind words

    Colette

  • Hi Colette, we've only just started the book club. We'er on our first book LESSONS IN CHEMISTRY by Bonnie Garmus. Shadders picked it as she suggested the club. Any comments welcome, also any books suggestions are welcome xx

    Moi

  • Yes Colette we are very lucky to have them. I'm on immunotherapy and have my treatment at home once a month, because I tolerate it well. xx

    Moi

  • That's brilliant to be able to have treatment at home. 

  • Apologies for the double L

    Xxx

  • No apologies necessary 

  • Hi  welcome to the group from a fellow '69er. So good to see you are doing so well. I have a rare cancer as well, and I have been in the incurable category for nearly 9 years. X 

    Chelle 

    Try to be a rainbow,in somebody else's cloud
    Maya Angelou

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  • Hi Smiffy, like you and Sistermoon I’m a 69er! Best year in my humble opinion! Welcome to this lovely group of people. Such a huge support to all of us, all with different cancers and all at different stages but all with a love of life and still wanting to laugh. Well I think we all do anyway! Joy

  • You're very lucky they're operating on you at Stage 4!  Stage 4 is usually inoperable. That's what I've always been led to believe,  anyway.

    Or maybe itds sjust Stage 4 lung cancer they don't operate on???

    I've tried to find out why, but just get  "We dont operate once its spread"

    Whats your secret? How did you convince them to operate on you.

    Genuinely curious.