Secondary BC spread to bones and liver.

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I am 41 and been back and forth to the doctors for the past 7 months for unexplained back pain which moved around and got worst around my period. 

June 24th 2022 I ended in A&E, got admitted to hospital and spent the next week having blood tests, chest and spine      X-Rays, CT scan with a tracer, MRI scan. 

30th June my doctor came and told me I had stage 4 breast cancer which had spread to my spine causing fractures and spots on my liver. More test followed and one round of radiotherapy on my spine and a dose of Denosumab I finally got home on the 9th July.

My world had ended.

Iam lucky to have the support of my 2 teenage daughter's and loving partner and family.  

I saw my oncologist 19th July for a treatment plan.                 I Am ER+ PR+ HER2 negative with a 17mm mass in my breast. As well as my spine it's in my ribs, sternum and pelvis. 2 spots on my liver and potential peritoneal deposits. (Well and truly fucked)

I have started Zoladex to induce menopause, commence Letrozole in 2 weeks with Ribociclib and in a month after dental treatment is finish will have monthly injections of Denosumab. 

I am still in total shock and finding it all very hard to come to terms with. I thought I went in to hospital with back ache and came out with stage 4 cancer and an early death sentence. 

Am hoping over time as as my treatment progress I will find a more positive outlook but at the moment I can see no joy or happiness just pain and sorrow mourning the life I cannot lead.

Is there anyone in a similar position or on the same drugs? 

  • Mmum I am stage 4 kidney cancer with spread to bones and various other places also on immunotherapy which is working well for me right now. Happyrattle i was diagnosed competely by chance i had no symptoms of being unwell just pain in my hip that i had a xray of and that showed my secondary bone cancer. Our girls were 16 and 14 at the time and i didnt look any futher than getting the eldest through college and the youngest through GCSE that was 11 years age, im well past my sell by date,cancer has put me in a wheelchair but even on the days i feel my worst something will make me smile. You will find your true friends and that may be a shock. i also felt like i could relax when i sorted out things like my will. Dont try to rush things unless you really need to. You will find support and even a good few laughs here. Take care

  • Thank you Elliekate,

    reading your story really does bring me hope, If I can make 11 years that will see my eldest through uni (6year course to be a vet) and my youngest through GCSE, college and what ever she goes on to do. 

    x

  • What you say makes a lot of sence. Last weekend was our 20 year anniversary of being together. 

    I know it's deffently what he wants and my kids have been nagging us for years to get married so I think it might mean a lot to them, like you said it will allow them to remember us as a family in the purest sence. 

    You are very brave allowing them to arrange it all, My girls used to try and get us to agree going on the kids show "marrying mum and dad" but we never did. RoflJoy

    Also if the more "practical" reasons make life easier for him and the girls after I have gone, then I would do anything for that peace of mind. 

    lastly I agree it is romantic and God knows anyone in our position does deserve some happiness. Blush

  • FormerMember
    FormerMember in reply to happy_rattie

    Hi happy rattie,

    Sorry to hear of the shock you've had, welcome to the group. If there's any advise I can pass on, is keep your mobile on you all the time as you'll get loads of calls arranging apts, scans etc.

    On the wedding front, arrange yourselves a lovely day with your close family. My neighbours partner was unwell for a few years but died really suddenly. They weren't married and his daughter tried to totally clean out my lovely neighbour. The daughter took possession of his other house, bike and car. It progressed further and she took legal advice but it caused her loads of stress.

    Take care, things will settle down,

    Amanda x 

  • Happie-rattie

    Go for it.

    Just propose to him - tonight. Why not?

    It will make you all so happy and be a fantastic memory for your family. 

    Message us all in the group when you’ve asked him.

    My ceremony is tomorrow at 4pm. Can’t wait. 

    Take care guys,

    Rameses. 

  • FormerMember
    FormerMember in reply to Rameses

    Have a lovely day tomorrow, enjoy

  • Hope you have a lovely day. Many congratulations. Rainie x

  • Hi Amanda,

    That's awful for your poor neighbour. 

    Keeping my phone on me sounds like a plan. Do they normally call for appointments or send a letter?

    If we do get married it will only include the people who mean a lot to both of us. 

    x

  • hahaha.....  what a fantastic idea!

    My fields are away for a few days so think if I was going to do that I should wait till they are back so they can be apart of it. 

    Once again I wish you and your partner a wonderful day tomorrow. TadaBride with veilMan in tuxedoChampagne glassChampagne

  • Ramses,

    Your story is very similar to mine.

    I had shoulder pains and was not expecting to be told I was Stage 4!