Hello - New and Fighting

Hi VioletSan, welcome to the group. None of us want to be here, but we do our best to support one another through happy times and hard times. You certainly have had a lot of chemo, no wonder you are running low on fuel. I hope that you find the support you need here.

Best wishes 

Welcome to our group VioletSan you will get loads of support on here when you need to as Salis has said you have had a lot of chemo it's bound to knock the stuffing out of you so don't beat yourself up huge hugs xxxx

Hi and welcome! Yes it is hard to except...but what can you do. Just keep on going like you already do. See many of us are way behind our sell by date..so there is always hope. 

I'm recently diagnosed (nov 2021) so in a different place to you.  But, in all my dealings with the NHS teams, no one has mentioned "terminal".   It's all been "not curable" and "treatable" terminology now.  It was either  or @Norberry who first outlined on here the difference between the terms.   As has been mentioned before, people in our club can lead normal lives and carry on for many years.  Stats are just stats and the treatment options are rapidly evolving. 

Hi VioletSan, regardless of our primary Cancer, we are all in the same matastic club, we are not just numbers or stats,we are all different. I was told 24 month's tops by a urologists, but oncologist say's that's not even a good start date, try 10 to 20 no promises unfortunately, accidents do happen.  So we are incurable but treatable, not terminal, screw the side effects and pains, life is for living get on and enjoy it.

All the best Ulls

Hi . I'm also fairly new to the group here. Having thought I'd beaten Endometrial cancer but my serous variety popped up all over revealed by a CT scan ordered by my GP for seemingly unrelated problems. It was like I'd been buried under a ton of bricks being told I was incurable - I'm a Community Champion for the Womb cancer group and suddenly found it so hard to be positive for other people and debated giving up my role but decided not to. 

Like you, I sometime feel lost with nothing left in the tank, I've got to defeat this little bugger and be positive. I'm aiming for the stable Mabel club but am quite a way off.

Just had my 5th chemo last week so no doubt rambling at bit - sorry LOL. Last cycle on 25th March then a short rest before planning the way forward. Also my peripheral neuropathy makes my typing something to behold! 

I've found this group here super supportive and veer between tears and laughter most times at the posts but you'll realise you're not alone, we're all here for each other to offer love and support.

Bigs hugs, Barb xx

• Hi Barb yes the incurable diagnosis does nock the wind our of your sailes. When I was told this I thought every day was my last and decided I'd let my oncologist and surgeon do there part and I'm getting on with my life. I've been a member of stable male club for 18 months, besides having my treatment yesterday, I often forget about big C for a little bit. Well must sign of now as off to the garden centre.  Take care  

Hello Violetsan and welcome to the group. We have all been through varying things but we all know what it's like to get that diagnosis and it takes us all very differently. it's sharing those experiences on here that can help chart a way through - often with a bit of humour thrown in. Lots of experience and advice too from those who have trodden the path already. Sending big hugs out to you. Rainie x

Thank you all for the kind words and information. I saw my oncologist last night and I’m a bit upset. My cancer markers are up. But I’m still able to have treatments and there are other treatments he said I can try. So I think it’s not a bad bad thing. Yet.  But it’s not what I wanted to hear and it’s the first time I’ve been told about my cancer markers.  I guess I’m confused. My oncologist said I do have a very aggressive form of cancer, and said given that I am doing amazing.  I hope I can get my head round this’d.

Hi VioletSan, my oncologist has never mentioned cancer markers, when I told her my bowel cancer nurse was pleased with my markers, she said good they do go up and down, but don't concern your self team, we are working to keep you stable and it's working . There are lots of treatments out there, so go with the flow. DON'T GOOGLE a lot of it is out of date or just not accurate and you end up getting anxious and upset. Ask your team what you want to no and come here for support from people who are in the same or similar  situation as you. Big hugs