Hello - New and Fighting

FormerMember over 3 years ago

12 replies
71 subscribers
1585 views

Well I will introduce myself again …. I’ve joined before but lost my log ins with my sieve like brains!

I have incurable metastatic breast cancer. In August 2015 I found a lump, I had triple negative breast cancer. I was warned it was aggressive and life span not good. I had a lumpectomy, chemo and radiotherapy. In July 2017 felt an odd pain in the site of the lumpectomy, cancer confirmed, mastectomy and reconstruction carried out. In July 2019 I felt a pain in my back similar to when you have a cold. It was cancer. This time had spread to my spine and rib. I was devastated. I was getting married in August and it seemed so unfair.

Well here I am over two years later. I have chemo every month and have done since November 2019. I’m on Gemcarbo but not with the second dose I days later. I tried that but it was too strong. I’m feeling ok. I’ve issues with my back now and I can’t walk or stand for long. I feel a bit weak in my muscles like I can’t hold my arms up and get very breathless. I guess I’m trying to understand what’s happening to me. Is my back bad and my arms weak as I don’t do much exercise? Or is it the build up of over 2 years worth of chemo taking a toll. Obviously I don’t want to break from chemo as my cancers grade 4 and aggressive and I don’t want it to spread any quicker.

Im looking for help to understand and find people like me that are lost, trying to fight but running low on fuel. I don’t know…. I have taken a long time to accept I’m terminal nd I still struggle. So hello and hope I can help others who can help me too xxxxxx

Himalaya over 3 years ago

Hi there. I'm TNBC too and empathise COMPLETELY. PM me if you'd like to keep in touch.

Himalaya

biddy51 over 3 years ago

I also have incurable metatastic breast cancer which has spread to my lungs and spine and possibly liver. I had primary breast cancer 11 years ago and had a mastectomy and radiotherapy. I even got the all clear after 5 years. Unfortunately during lockdown 2 years ago i was loosing vast amounts of weight and continually vommitting. after tests was infomed that my cancer had returned and spread and is incurable. the surgeon made me feel like I had no hope, however I have a very good oncologist that speaks to me via telephone every month to see how I am coping and gives me the opportunity to ask questions and get relief from symptoms. I am on Palbocyclib, a targeted chemotherapy and letrazole. I sufer with chronic fatigue but have good days aswell as the bad days. I have 3 monthly C.T scans which show my cancer is being controlled and quite stable on the current treatment.

I attend weekly cancer Rehab exercise sessions to try and keep fit and loose some weight which is extremely difficult due to side effects of the medication causing weight gain.

I too have muscle weakness and shortness of breath. I understand it depends on where you live to the extent of services available to help maintain fitness and provide emotional support xx

After 10 years cancer free, i have now been diagnosed with a recurrence of my reast cancer which has spread to my lungs and bones. This came as a terrible shock as I had no symptoms althogh I have a muscuar dystrophy which was giving me cause for concern. I was eperiencing increased difficulty swallowing and shortness of breath leading to a CT scan which showed a suspicious lesion and further inestigation led to my current diagnosis. I have been commenced on targeted therapy and due to have injections after seeing my dentist for a check up and any necessary treatment. in the current time with corona virus it is not easy to get dental treatment. I have a dental problem needing treatment. I have a loose filling and a break in the same tooth. I managed to get a check up but my dentist cannot perform the relevant treatment. I am currently waiting for a call to determin how I can get the treatment done.