Just had my first treatment with Eribulin. I asked for cold cap and they said not needed as it was only a 5 min infusion. Now all my hair is falling out. Not happy.
Thank you . I went for treatment yesterday and they have decided I can have the cold cap now ! So I did ! I think it’s prob too late now , we’ll see what happens ! Hugs back . X
It's horrible when your hair comes out. I remember my cancer nurse came to wash my hair when I was in hospital. I bent over the bowl and the hot water felt lovely. Then I massaged my scalp and felt it all come away. I looked down and it was all floating in the bowl. Burst into tears. We had a big hug and after a bit of a blub we carried on like you do. So a big hug to you. It will likely come back at some point. Rainie x
Hi Keepfit, I have had one erubulin infusion and am expecting the hair loss after the next treatment. Given they couldnt do day 8 infusion due to low white cells, I get to keep it probably for another week or so. This will be my 3rd time losing it, so am used to it. Hair isnt the most important thing in the scheme of things, so I just enjoy choosing nice scarves and hats - at least everyon wears woolly
h ats outside in winter! I have known others have the cold cap - sadly it didnt work for them. It does add a long time to your treatment,as you have it on for about an hour if i recall, so I can understand why the first time they refused you - the chemo chairs are fully booked most of the time and unexpected delays cause problems. Hope your first dose has not caused you any problems other than hair loss.
chellesimomentions having alopecia. I have a friend who has had that for years, and is at ease with her lovely bare skull. It is funny becuase when we go out everyone is likely assuming she is the chemo patient, and I am not. If it ever comes up in conversation, I tell people I win as I have cancer and she just has alopecia.
I said this years ago on here ; ladies look sexy without hair.
Of course no one said I did when I was hairless but I think they were jealous! I've never known anyone's hair not to come back eventually but by then you may have learned to love that smooth look.
Hope the treatment go well for all of you. Xxxxxxx
Hi Keepfit, I was really upset when my hair started to thin so much, you could see my scalp in a lot of places. My specialist nurse referred me to a Cancer Hairdresser to be fitted for a wig. I wore it, maybe twice, then decided it wasn't for me! I was on a Trial drug and that was one of the rare side effects. When (& it will!) it starts to grow back, Plantar39 shampoo encourages growth and worked well for me!
Love Annette x
Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
Well Norberry I am now one of the frisky lot you refer too. Felt my scalp get sore Friday lunchtime and by evening hair coming out in chunks. Shaved it all off sunday. Just need to paint myself blue and I can be like someone from the film Avatar. Like you anndanv, the first time it happened in 2003 I got a wig and wore it a few times, second time got a wig and wore it about 3 times, and this time - well wig is there if I need it. but I wont. I prefer scarves and hats, I feel less selfconscious than with a wig on - and my wig makes me look so like my older twin sisters it is scarey. I know some people like wigs, but I was always checking if it had slipped.
At least the dogs dont seem to have noticed anything! They love me no matter what.
