Hello! I have Stage 4 Kidney (in lungs, lymph, skull...)

Welcome to the group. Theres some interesting topics covered which may interest you. I really do believe that just living form day to day helps to take the worrying of the future away. I have accepted that theres nothing I  can do do change my outcome. I also have spent time reflecting on gratitue for my life and experience s. At 60, i have experienced everything I hoped to in one lifetime. Take care...tony

Hello Tony73

Thanks for the reply and it is uplifting to see your positive outlook. How wonderful to hear you have experienced everything you hoped to but are you still awaiting treatment? (on your profile...) The waiting is the worst but the living-day-to-day advice is probably best. I hope you stay in a good place & thanks again

Hi again. My cancer is beyond the bowel into the abdomen.  Surgery is not possible. I have been offered palliative chemo but im still unsure. It depends if the partial bowel blockage gets worse. Ive had this disease for probably 10 Years and went under the Rader on colonoscopy, numerous other scans and blood tests. symptoms for five year's plus. Im just trying to make the most of each day which doesn't mean much. Its what I can do. Its strange but I knew from an early age I wouldn't have mega old bones. My parents hit 90 Years. I kind of lived in the faste r lane before 30 and probably did too much. Ive discovered that doing little is just as good.    Ive alway s believed that expectations leads to disappointments,  So I avoid this mindset. Really, I had to work hard to get here.  its not easy.

when my.time is up...so what. It happens to everyone. I just want dignity at the end.

i find talking to my partner helpful, but I realised that we are independent spirits.This is my journey.

Hello Chillamum, We are all in the same boat on here and welcome you, as others once welcomed me, to this 'club' where nobody wants to be a member. You will find a lot of understanding here so don't bottle things up. You can say things here that you might not be able to discuss at home or with family. Here you will find support, some humour and a lot of listening ears. Sending you a big virtual hug.  Rainie X

Welcome Chillamum. Whereabouts in Scotland are you? We just got back from driving the NC500. Beautiful up there. 

Much love, 

Stuart x 

Welcome to the forum, sorry you have a need to be here. I went through a phase of not really living or making plans then one day I decided f&#k it and started booking holidays and concert tickets with the view that if I managed to go great and if I didn’t so what. It was very liberating and I have been trying to live every day since. I have to admit 5hat I do have to have rest days but I have got back into watching tv series without thinking what’s the point I may not make the end of the series. 

Hi Chillamum, 

Welcome to the group, I have been here for about 9 months I think and have found the support invaluable.

I have had palliative chemotherapy and am now on scans every 3 months waiting for something to happen. You may have seen the word 'scanxiety' here, I try not to let it rule my life.

As Remoh says, plan stuff and do stuff, don't worry too much that you may not see it through, just enjoy it whilst you are doing it, and take a break when you need to.

Best wishes 

Welcome to the group we all support each other day or night we are one big family on here xxx

Hi Sal. Good to see in your profile that you are more stable and able to enjoy life more. I have a small family -2 sons in London in their 20's, a brother with wife & niece in Berks and my husband has a brother and sister. Everyone and my friends too are down south and we are west coast Scotland (long story but stuck here with property prices). I think that is why I am miserable, not being able to see them more than once in the last 2 years. I will try to get down south again and am immeasurably grateful to my boys who come as often as they can. Take care and thanks for the reply x

Hello Popgate! I have just read your profile and instantly recognise a kindred spirit as far as the gardening, privacy and especially dog and anxiety are concerned. I live with my husband here on the west coast of Scotland (long story but stuck here now 450 miles from family and friends). But my husband & I have given up speaking to each other tbh with all this - we have very different ideas and approaches so just can't talk at all now. So I. too. have come to these groups to be able to talk a bit. You are having a terrible journey - so sorry to hear. I have immunotherapy (8 rounds so far, every 6 weeks) so don't know much about chemo. How may have you had? How often? is it ongoing? Do you have the 3 monthly scans that many of us seem to have? Hope this will be a good day for you x