Hello! I have Stage 4 Kidney (in lungs, lymph, skull...)

Hi Richard. What a roller-coaster; you and your family have been through things no-one should have to bear but you seem to be in a better place at the moment(reading your profile). If you can be so positive then I must make more effort! I wish you the very best news possible next time and thank you for your welcome and support x

Hello Galilee. We are west coast - very beautiful but far too far from family and friends. You have been so very unlucky with immunotherapy (not to mention 2 primary cancers - so, so sorry).  You have the same as me on the face of it but I now know I have been lucky not to have had any symptoms really and am coming up to my 9th Immunotherapy. It is good to hear you are getting out and about and enjoyed your trip. Plan to visit the west coast and inner Hebrides with all the ferries - even more beautiful than the 500 (and probably less busy!) Take care and thanks for the reply  x

So nice to get your reply Rainie and sending a hug back. Your results sound amazing and I hope the August scan (reading your profile) was equally positive? Let us know...  So many of you are so positive so I need to pull myself together and be grateful for my journey so far...

Tke care x

One day at a time Chillamum and try to enjoy each one as best you can. and Yes, my August scan was still clear. Thanks for reminding me to update my profile. Rainie x

Rainie that's absolutely brilliant! So pleased for you. Stay well!!!! x

Well as the say life is a roller coaster and you can either close your eyes and scream or throw your hands in the air and enjoy the ride

Hi

i think I can empathise with some of your personal story and I have found the experience of cancer can be lonely when I am unable to have honest and open discussion. The reality is that I do have to moderate my discussion as the reality can sometimes be too real for some family and friends. I have found that in the past few months I am less concerned with the future and focus on the here and now. It’s not me being especially positive but the anxiety and speculation is overwhelming so I believe I am being kinder to myself. I am making plans for things in the next few months and if they need to change then they will be changed. I do think that actively being aware of good things really can be helpful and if you are able to take walks and take time to experience the natural environment it really helpful. I certainly have not lived as long as I had hoped but there is nothing I can do but I do have more ability to control what I am doing day to day and how I feel. It’s helpful to articulate how you are feeling and I think that using this group could be helpful and it may be worth seeing if there are local face to face groups you could join. 
take very good care 

Hi LinZiR. Thanks for the reply and sorry you are having to be in this group. Sounds like the chemo has made an impact and I hope it means you can go on with some meaningful life.

After my recent scan results which show the pembrolizumab+Axitinib is not working, I am on a "break" for a week before starting new pills. My oncologist has discussed timescales and even mentioned Christmas 22! I am not feeling that is likely but am, too, making plans for trips down south to see family and friends. I realise now that's a good thing - having something to look forward to. Inside, I'm gutted that the best treatment there is for kidney cancer, and me being lucky enough to live in Scotland where I can get it, hasn't worked for me. I have an ache in my chest area that I'm sure is more disappointment than just the tumours.

Look forward to your plans too - so good to know you have such reliable friends who must hold you very dear. Pure gold. Take care x

Youdrove past whatwas my door too then! I miss it