Colorectal cancer

FormerMember over 3 years ago

6 replies
63 subscribers
1305 views

January 2020 finally had a colonoscopy which revealed cancer. Chemo then radio then in September an operation to remove tumour. Unfortunately after op cancer spread to lungs and liver. More chemo which didn’t work then nivolumab and regorafenib which reduced myCEA from 400 to 16. Then ablation on my lungs and CEA started to creep up. Liver op plannedend August. . However after severe chest pain a scan revealed cancer spread to my thorax. Opera cancelled and now it’s looking bad. Main symptoms are breathless and coughing. Any ideas on coping with cough. My daughter getting married in two weeks!

Rainieday over 3 years ago

Hello 'slim'. This is such difficult news to hear from you, and for you to bear of course. Have you been prescribed oxygen and a nebuliser.? Both helped a friend of mine deal with her breathing problems. Are you still in hospital or back home?

Others on here may know more about your particular cancer. For now, sending you a big hug and hope you get some positive news from your medical team soon. Rainie x

roni2008 over 3 years ago

I have mesothelioma so sometimes suffer breathlessness and a cough. I’ve a puffer and codeine linctus for as and when.

FormerMember over 3 years ago

Hi Slim,

Sorry you're having such a rough time. I have dexamethasone to help with my breathing, and oramorph really helps with coughing.

Can you get either of these?

Stuart x

FormerMember over 3 years ago in reply to Rainieday

thanks. I am at home and interesting coughing problem is less now than a couple days ago.

FormerMember over 3 years ago in reply to FormerMember

the coughing seems to be abating but if it comes back will look into this.

FormerMember over 3 years ago in reply to roni2008

thanks the coughing seems to be abating.