Facing the end, not sure when

Dear Patricia, it's lovely to meet you though I wish the circumstances were different. You sound much like me, emotions bouncing up and down. The unfairness of the situation. I have no treatment options left, unless there is a trial drug somewhere. Enjoying life while you can is important, and it's also important to remember that it's understandable to be angry, in despair. No doubt our other forum friends will be in touch soon. We are here for each other. Take care x

Thanks so much Flowerlady, I feel better already reading these forums!

Hi Patricia

these emotions play havoc don’t they? It was suggested to me to keep it in the day, far easier said than done but it does help when I manage too. Otherwise I find myself counting down to dying and forget to enjoy whatever time I have left. Thinking of you

sylvia

Hi Patricia,

I'm with you, no more treatments as I declined the third line option. Just enjoying life while I can.

Stuart x 

I was struck by one paragraph    'have NOT yet lived a long, happy life' 

Im 60 and I did feel short changed. I have neighbours going on holiday in their 80s. I began to realise that I was reflecting on expectations for a start. When i took a closer look, i understood that there's no guarantee of Years. Some people die at any age with disease. I personally know people who died in their 30s.

I think we need to understand what makes us happy in our remaining time ! I was misdiagnosed and now im going to die. I dont know how long ive got but im trying to live each day count. Suddenly, the very simple things in life make me happy., Something i should have done Years ago.

I hope you find some sort of peace of mind. Im still working on it but im making progress.

TONY

I 

Hi Patricia welcome to the forum, sorry you need to be here. I was diagnosed incurable at 54 no time limit was given but in the 6 months previous to that I had two brothers in law who had been told they were terminal and both died within 3 months of diagnosis so I know all about the anger and the I have lived a long life yet. I have now been incurable for 2 years and I am currently stable so haven't  faced the its growing and nothing is stopping it phase yet.

I hope you get to make many many memories before anything changes to stop you from doing so.

Good idea Ms M, probably not good to think about these things at night... Thank you!

Stuart, I never thought I'd be one of those people who made this choice, I was all about fighting fighting fighting before. But I always thought I had a chance for a decent outcome - a year at least for every lung surgery. Not so much now. Like you, just enjoying it while I can! It is weird, I feel fine, don't *feel* like I'm dying. I'm still improving from some setbacks I had back in April/May. Still doing some physical therapy. I guess until I can't anymore? In case I have a year more, so I am as strong as possible during it?

Toni, it's true, the simple things in life... Thank you!

Thanks Richard, hoping it stays asleep for a long time for you! Patricia