Facing the end, not sure when

FormerMember
FormerMember
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Hi all,

I'm Patricia, 50 years old, living in the US (hope it's ok I'm on here!). I have been battling osteosarcoma since 2016, with multiple multiple treatments, and my cancer has kept coming back, now it is spreading and growing. The only options I have left I guess you'd call 3rd or 4th line options. We had a discussion with the medical team about quality vs quantity of life on the remaining treatments, and for me they are not worth it. I have a 5 year old (we adopted later in life), and I want to make as many memories with him as I can before I go.

Having said that, I have no idea how long I have. The doc said in June that doc's estimates are really unreliable (he is very honest with me about the limits of his knowledge), and that I could have "weeks, months, maybe a year". We have done weeks and months, so now I am aiming for a year!

I have been furious at my situation - I have NOT yet lived a long, happy life, I want more more more. And it has felt surreal - how could this be happening? At my age? To ME? And lots of other feelings. But right this minute I am hopeful about a year, and enjoying my life. We took a wonderful vacation trip with family back to where I grew up, and I so enjoyed that. I spend time with my wonderful son. And more.

So for this second I am ok, but I do tend to swing all over the place - some days are harder than others, some days death is in the front of my mind and others I tuck it back in the back. It's always back there though.

I see all the support on here and think you all are great!

Patricia 

  • Hello Patricia,

    You sound like you're very strong and will handle this with all you've got. Your little boy is lucky to have you and I hope you continue to feel well enough to make lovely memories with him and your wife.

    It's great that your doctor is so honest with you and isn't sure on timings. Everybody is different and with your attitude and determination who knows you could still be around for quite some time to come. 

    At this moment I don't feel like I'm going anywhere soon and am enjoying the time I've got with my family. I try not to say no to things even if I don't feel up to it and then so glad when I've done it. It can be too easy to dwell on negatives. Easier said than done I know, but that's what I aim to do.

    Keep on doing what you're doing and never stop believing in yourself!

    little-fi x

  • FormerMember
    FormerMember in reply to little-fi

    Thank you so much little-fi! Very true, about doing it even if you don't feel like it sometimes.

    Patricia

  • Dear Patricia, We all feel like you. Up and down. Sometimes quite calm and accepting, other times it's a rollercoaster of emotions. You're not alone. Sending you warm wishes and virtual hugs across the pond. Rainie x