Hi everyone,
I have been muddled up with this site on my phone and have messaged in wrong groups so I apologise if you've read this before.
I am 39 years old and have recently been diagnosed with stage 4 melanoma cancer with multiple brain and lung metastasis. Obviously this was a shock and hearing the words we can "only try to prolong your life" was hard to digest.
I had a 2.9mm nodular malignant melanoma removed from my upper back in 2018. I had wide local excision and sentinel node biopsy which came back negative. Unfortunately 3 years on during a routine head scan for my eye check the brain tumours were found and the rest followed.
I've had 5 sessions of full brain radiotherapy and have currently had one round of immunotherapy Opdivo(Nivolumab) and Yervoy(lpilimumab), my next round is on the 28th of June.
I have always been a positive person and that is not going to change. I have to believe that miracles can happen. I am the proud dad of 7 year old twin boy's. My boy's were born prematurely on 24weeks gestation, they had a horrendous start to life spending many months in intensive care. They're both now non-verbal autistic with severe learning difficulties but they're amazing and my absolute reason to keep going. I can't even think of not being here for them and leaving my wife to bring them up alone.
Everybody's journey is different but I hope you're all having good news with your own personal battles. Don't lose hope because as my boy's have shown me, miracles can and do happen.
Has any body had some positive news lately with immunotherapy?
All the best,
Steve
The strongest people are not those who show strength in front of us, but those who win battles we know nothing about.
