Recently diagnosed with adenosarcoma right lung tumour

FormerMember
FormerMember
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Hello to all,

   I just had my final diagnosis on Friday following a pet scan at Maidstone Hospital. I have been having test after test for three months and have not begun any treatment yet. I had a phone call yesterday to say that my chemo would be starting within a couple of weeks. I have not been able to tell anyone, as my daughter is in Thailand and has been trying to get home for over a year. I don't want to tell her on Facetime, so am waiting until I have no choice. If I tell anyone else, they may let it slip on Facebook, though I rarely use it myself. The only time I've cried is when my daughter said I must go to visit her in Thailand, if not this Christmas, then the next. I held it together until we had signed off, and then I I wondered if I would make it that far. I have a plan to tell her, but she's currently on an island and won't be heading back to her home in Chiang Mai for another three weeks. I have a friend who is a counsellor in Chiang Mai and I plan to ask him to be with her when he breaks the news. It's the kindest way I know. I suppose I also don't want people treating me any differently. I worry about that. I have a tumour in my right lung and palliative care is all they can do for me now. My son lives in Norfolk and I know if I tell him. he will probably freak out, throw his job up in the air and come rushing home, so I plan to tell his older sister first and then maybe we can tell him together. I live on my own and am getting anxious about how I will cope with the chemotherapy when the time comes. The nights are the hardest, as I find breathing difficult when I lie down. Thanks for reading. Sorry it's so long-winded. The other thing is that apart from my son and daughter, I have no other family, so there will be no one there to support them when I've gone.

   I have never joined an online group before, so a bit nervous.

  • Hi Redskelf, Sorry I'm late to welcome you but I've been having problems sending replies. I will inform Admin!

    Anyway, you have definitely come to the right place. We are all in the same boat here and some of us have been here for a while, which is a positive thing because we have passed our expected sell by date! The fact that they have offered you chemo is fantastic because they obviously think you are treatable. This is a roller coaster ride and at first everything moves too fast and it feels things are out of your control. Please believe me, the very worst thing is telling your children. After that, I'm sure things will start to settle. Once your chemo starts, you will get yourself into a routine. Chemo doesn't work with my type of cancer but I've known many people who have gone through chemo, more than once. 
    I think having a friend be with your daughter when she hears the news is a good idea but I wondered will you be there too on FaceTime or will you speak to her later?
    You may live alone but now you have joined this group, there will always be someone here to chat to!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
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