Recently diagnosed with adenosarcoma right lung tumour

Hello Redskelf. You are going through a tough time. If they are doing chemo then they must be doing so with good reason and a plan in mind. I really can't advise on who you tell and when but I think someone with that experience on here.may be able to give some pointers.

You have done the right thing in coming on here, the support you will get will see you through.

With all good thoughts to you. Xx

Thank you so much for your reply. I am looking at the positives. At one point they told me I had a tumour on my kidney too, but that turned out to be benign. I know that could have complicated treatment for two different cancers. I will read your profile and learn what you are dealing with too. Bless you.

I have just read your story and find it inspiring that you were diagnosed in 2017. I take some strength from your strength. Thank you

Redskelf welcome to the forum. All of us on here are incurable and some have been around for a while and some well past their doctor supplied expiration date.  I was told I was terminal in July 2019 my oncologist says he still believes I have well over a year if not years left. I haven’t had chemo as I have a type of kidney cancer that doesn’t respond to it.  I’m on other treatments that are currently keeping my cancer stable and have been for the last 6 month. There are always new treatments coming along as other have found.  Telling your kids is one of the hardest parts of all of this. Speak frankly with your oncologist and if you get assigned a nurse specialist then ask them all the questions you want that’s what they are there for and they really help. Also Macmillan can help with advice and support and finally there’s us lot on here that will always have opinions and experiences to share.  You may be home alone but you are not alone online.  

Thank you Richard,

   All I want is to be around to see an end to this pandemic, so that my children can travel again. Unfortunately, Covid cases are on the rise again in Thailand after being at very low levels for a long time. My daughter made it to Germany to her partner's parents for Christmas and was due to come here in January. . We then went into a strict lockdown and her German partner decided not to come to the UK due to Covid and Brexit. Since he was going directly back to Thailand, I told my daughter to do the same, as I did not want to have her trapped in the UK as they have a foundation to run there. I wasn't diagnosed then. They had to do 15 days of quarantine in separate rooms in Bangkok before being released to fly home to Chiang Mai, so when I was first told I had a problem early February, I could not tell them, as I didn't want them flying and doing quarantine again.

   The pandemic is just complicating things, as I am sure all of you have found too. I have decided on the best way to tell them will be to have my counsellor friend do it in Chiang Mai, if they make it back there from the island. At any minute there could be a ban on all domestic flights, so nothing is guaranteed. They may well be lockdown there for the forseeable future. 

   I am staying positive, as I am well at the moment, and that's all anyone can ask. I am doing a big cook-in today, in case I have trouble with all that when my treatment starts. Freezing portions of leek and potato soup which is a cure for all ills, according to my son. Thank you for your support. Stay well.

Eve

I had also never joined an online group either so I felt the same as you no need to be it's been a lifeline for me you get fantastic support on here day or night when you need it and you can have a laugh too always some one will get back to you so welcome to the group

Thank you. That's one of the reasons I am reluctant to tell anyone, because I don't want to be treated differently. I haven't lost my sense of humour and don't want anyone walking on eggshells around me. Laughter is something no one can take from you. Bless you. x

I've read your story, Flippen,

   I am also a very private person, and have social anxiety. Like you too, I have my amazing friend, who drives me to every hospital appointment and waits for me no matter how long I am likely to be. He is the only one I have told. He even said that if my appointment was in Edinburgh, he would still drive me. With support like that you only really need one friend, so we are both blessed in that way. I am dreading losing my hair, mostly because it will be an announcement as to my condition and I will find that hard to deal with, being such a private person. I said to my daughter once, that whenever I see a bald woman, she always seems to have the most perfect head, and mine has dents and bumps, so goodness knows what mine will look like. It won't be pretty. Stay strong. You are dealing with so much.

Eve x

Totally get the wanting to outlive the pandemic. In some ways for me it’s been a positive as our son and his girlfriend are due to go off travelling but can’t due to the pandemic so that’s a plus In terms of seeing them when possible. Missed out on our 30th anniversary holiday due to COVID so I want to outlive the pandemic in good enough health to do that holiday. Feel free to ask whatever you want on here as someone is most likely to have experienced something similar 

Don't worry overmuch about your hair. I know it is important but it grows back quite quickly once the chemo has finished. In my view women look very sexy without hair, striking actually. I can only say that on this forum, I would be arrested for unwoke behaviour outside.! Xx