Hello to all,
I just had my final diagnosis on Friday following a pet scan at Maidstone Hospital. I have been having test after test for three months and have not begun any treatment yet. I had a phone call yesterday to say that my chemo would be starting within a couple of weeks. I have not been able to tell anyone, as my daughter is in Thailand and has been trying to get home for over a year. I don't want to tell her on Facetime, so am waiting until I have no choice. If I tell anyone else, they may let it slip on Facebook, though I rarely use it myself. The only time I've cried is when my daughter said I must go to visit her in Thailand, if not this Christmas, then the next. I held it together until we had signed off, and then I I wondered if I would make it that far. I have a plan to tell her, but she's currently on an island and won't be heading back to her home in Chiang Mai for another three weeks. I have a friend who is a counsellor in Chiang Mai and I plan to ask him to be with her when he breaks the news. It's the kindest way I know. I suppose I also don't want people treating me any differently. I worry about that. I have a tumour in my right lung and palliative care is all they can do for me now. My son lives in Norfolk and I know if I tell him. he will probably freak out, throw his job up in the air and come rushing home, so I plan to tell his older sister first and then maybe we can tell him together. I live on my own and am getting anxious about how I will cope with the chemotherapy when the time comes. The nights are the hardest, as I find breathing difficult when I lie down. Thanks for reading. Sorry it's so long-winded. The other thing is that apart from my son and daughter, I have no other family, so there will be no one there to support them when I've gone.
I have never joined an online group before, so a bit nervous.
Welcome to the forum Eve. The pandemic has really screwed up a lot of things for us uncurables. Hopefully we'll all stay healthy and see the back of it soon.
Take care,
Stuart x
Haha. I have already checked out some wigs, but I'm a natural blonde and the USP on the blonde wigs seems to be that they have a dark regrowth to look authentic. My own hair has no dark stripe, but is a mixture of blonde and silver. Strangely it's going silver faster on the right side. I've been enjoying seeing what happens next with it. Maybe I will just ring the changes and get a brunette one and people can just think I've got adventurous in my old age. God forbid you should be unwoke in this day and age. x
Like that Norberry, you do make me laugh some times, whereare you moving to.
Ellie xx
Hi Redskelf
Once you have your plan in place you will no what way you are going..
I was diagnosed in 2016, had chemo then immunotherapy, and no treatment for two years, have just got back from hospital and now have to have radiotherapy, i am incurable, and never thought i would still be going, but here i am and apart from getting old, nothing to complain about.
You will get a lot of support here, and as you i found telling my grown up children the hardest thing i have ever had to do..
I am now on my own, i was not at the start of this journey, but i lost him 18mths ago, so doing another lot of treatment with out him, i wonder how i will cope, you are not alone here, use when every you need to,
Take Care Ellie x
Quite often it will come back completely differently. I havnt got much but mine came back like a Mowhawk. Thats probably a bit of cultural misappropriation. Here I come, another 24 hour suspension!
There is somewhere on these threads very recently about posh and very comfortable caps, some kind person could redirect you to the link, anyone?
I make most people cry Ellie so that's a change.
We are moving to Horley from East Grinstead as my family all live there. La Norbette, as she must be called, doesn't have any family at all so needs to be a bit closer to help and support for when I snuff it.! Not planning to yet but got to have a plan as we all say on here.
Always brilliant to see your name here, good luck with your next lot of treatment. Xxxx
Hi there have just put you in friend request on pm pm if you want any tips on hair eyelashes etc chat or a rant xxx
Popcorn, you always lose your eyelashes down the plughole, how is this going to help.?
With all my hormone treatment I am going to get into La Norbettes make up drawer, I reckon I could look pretty hot with a full makeover?
SiT said he would share his experiences with a touch up with me. That doesn't sound right!
The caps are sold through ETSY by a company called ' Beautiful Warrior' the lady who runs it has no hair, they have had great write ups on here. So might be worth bearing in mind Eve. Xx
Thank you., Norberry. Unwoke and cultural appropriation. Might as well be hung for a sheep as a lamb, I suppose.
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