Recently diagnosed with adenosarcoma right lung tumour

FormerMember
FormerMember
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Hello to all,

   I just had my final diagnosis on Friday following a pet scan at Maidstone Hospital. I have been having test after test for three months and have not begun any treatment yet. I had a phone call yesterday to say that my chemo would be starting within a couple of weeks. I have not been able to tell anyone, as my daughter is in Thailand and has been trying to get home for over a year. I don't want to tell her on Facetime, so am waiting until I have no choice. If I tell anyone else, they may let it slip on Facebook, though I rarely use it myself. The only time I've cried is when my daughter said I must go to visit her in Thailand, if not this Christmas, then the next. I held it together until we had signed off, and then I I wondered if I would make it that far. I have a plan to tell her, but she's currently on an island and won't be heading back to her home in Chiang Mai for another three weeks. I have a friend who is a counsellor in Chiang Mai and I plan to ask him to be with her when he breaks the news. It's the kindest way I know. I suppose I also don't want people treating me any differently. I worry about that. I have a tumour in my right lung and palliative care is all they can do for me now. My son lives in Norfolk and I know if I tell him. he will probably freak out, throw his job up in the air and come rushing home, so I plan to tell his older sister first and then maybe we can tell him together. I live on my own and am getting anxious about how I will cope with the chemotherapy when the time comes. The nights are the hardest, as I find breathing difficult when I lie down. Thanks for reading. Sorry it's so long-winded. The other thing is that apart from my son and daughter, I have no other family, so there will be no one there to support them when I've gone.

   I have never joined an online group before, so a bit nervous.

  • FormerMember
    FormerMember in reply to FormerMember

    Welcome to the forum Eve. The pandemic has really screwed up a lot of things for us uncurables. Hopefully we'll all stay healthy and see the back of it soon.

    Take care,

    Stuart x 

  • FormerMember
    FormerMember in reply to FormerMember

    Haha. I have already checked out some wigs, but I'm a natural blonde and the USP on the blonde wigs seems to be that they have a dark regrowth to look authentic. My own hair has no dark stripe, but is a mixture of blonde and silver. Strangely it's going silver faster on the right side. I've been enjoying seeing what happens next with it. Maybe I will just ring the changes and get a brunette one and people can just think I've got adventurous in my old age. God forbid you should be unwoke in this day and age. x

  • Like that Norberry, you do make me laugh some times, whereare you moving to.

    Ellie xx

  • Hi Redskelf

    Once you have your plan in place you will no what way you are going..

    I was  diagnosed in 2016, had chemo then immunotherapy, and no treatment for two years, have just got back from hospital and now have to have radiotherapy, i am incurable, and never thought i would still be going, but here i am and apart from getting old, nothing to complain about.

    You will get a lot of support here, and as you i found telling my grown up children the hardest thing i have ever had to do..

    I am now on my own, i was not at the start of this journey, but i lost him 18mths ago, so doing another lot of treatment with out him, i wonder how i will cope, you are not alone here, use when every you need to,

    Take Care Ellie x

  • FormerMember
    FormerMember in reply to FormerMember

    Quite often it will come back completely differently. I havnt got much but mine came back like a Mowhawk. Thats probably a bit of cultural misappropriation. Here I come, another 24 hour suspension!

    There is somewhere on these threads very recently about posh and very comfortable  caps, some kind person could redirect you to the link, anyone?

  • FormerMember
    FormerMember in reply to ellie 73

    I make most people cry Ellie so that's a change.

    We are moving to Horley from East Grinstead as my family all live there. La Norbette, as she must be called, doesn't have any family at all so needs to be a bit closer to help and support for when I snuff it.! Not planning to yet but got to have a plan as we all say on here.

    Always brilliant to see your name here, good luck with your next lot of treatment. Xxxx

  • Hi there have just put you in friend request on pm pm if you want any tips on hair eyelashes etc chat or a rant xxx

    Flippen
  • FormerMember
    FormerMember in reply to Popgate

    Popcorn, you always lose your eyelashes down the plughole, how is this going to help.?

    With all my hormone treatment I am going to get into La Norbettes make up drawer, I reckon I could look pretty hot with a full makeover?

    SiT said he would share his experiences with a touch up with me. That doesn't sound right!

  • FormerMember
    FormerMember in reply to FormerMember

    The caps are sold through ETSY by a company called ' Beautiful Warrior' the lady who runs it has no hair, they have had great write ups on here. So might be worth bearing in mind Eve. Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you., Norberry. Unwoke and cultural appropriation. Might as well be hung for a sheep as a lamb, I suppose.