Oesophageal Stent time has come.

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It's a bit of a relief to have got "strong agreement" from my Oncology Consultant today for an Oesophageal Stent to be placed next week. Im even having to blend scrambled eggs now! It's going to be a busy week as the day after I start CAPOX and Herceptin therapies. Anyone had either a stent and/or Capox, Herceptin if so I'd love to know how you got on ..the good and the bad.

  • Hi Pepperpot, Sorryi have no experience or knowledge about the stent or drug but I just wanted to say good luck for next week, I hope it all goes well for you. Also I do hope there is more good than bad with them both!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Pepperpot, sorry I can't help you with either treatment, but I've heard they can be very effective for anyone with the her2 gene, often adding years to a prognosis,

    I do have dysphagia, and an oesophageal stent SEMS, has been discussed, as I have increasing problems swallowing, I believe the main side effect is discomfort/pain, with Globus sensation and a little bleeding on occasion. If it means no being fed by a tube, I'd go for it, even knowing I can't have anaesthetic, 

    best wishes with all your treatments,

    Eddie xx

  • Aw Thankyou Annette for your kind words.x

  • Yes I think with Dysphagia we are between a rock and a hard place.Im lucky I never feel hungry and have no desire for cooking anymore ( it's kind of a relief) Sometimes I fantasise about Fish and Chips on a cold wet day and this Sunny weather makes me think about Bruschetta with lots of garlic, olive oil Italian tomatoes and Basil as well as Mozzarella of course!! But heck I'm alive and enjoy my simpler life and that's what matters.Have a good day Eddie.

  • Morning Pepperpot,  I agree my friend,  we're still here,  and there's more to life than food and I often have no appetite either, but  weirdly I do like cooking/baking, which I find relaxing, more so when doing it with family or friends, and if I don't have any that's ok, I hope you have something enjoyable planned for today .

    Eddie xx 

  • Hi

    I had 6 cycles of CAPOX in 2020. The main thing is severe cold sensitivity. It is good you start it in the warmer months. No cold drinks andfood, metal cutlery, opening the fridge etc for the first few-5 days. Also one can’t cry as that really hurts! So I have to be happy and warm on CAPOX . 

    Good luck with everything, hope it is not too rough for you x

  • Ooh Thankyou for this heads up.I really want to start but am having the stent put in the day before so it's going to be a tough week all in all.Thanks again.x

  • It does sounds quite a lot going on. When they deliver the oxy through cannula, your arm will get quite painful. Ask for a heat pad to help. They ruined all my veins by cannula. A port is so so much better.

  • That's great advice.I had FEC chemo 15 years ago for breast cancer and I'm hoping I won't feel any worse than I did then .Just Meh for a week.But I'm older now and the drugs are different so who knoRolling eyes.I had a heavy fall ( tripped over the puppy on our walk) at the weekend and bruised my wrist and a couple of ribs so I've been on the Co Codamol and 10% ibuleve for last 2 days.Much better today but it's been a good practice run for next week Rolling eyes

  • Hi Pepperpot, sorry but I don't have either of those two things but I want to wish you all the best for your op when it comes 

    Tvman x

    Love life and family.