Need positive message as terrified and feel not much time left

Hi Annette,

It’s wonderful to hear you are still here after all this time although I’m sorry you’ve been through all this. Thanks so much for replying and you are right being in limbo is awful and takes me back to when I was first diagnosed. I used to be fit and healthy for my age and it was bad enough knowing cancer was in my lungs and ribs but brain mets sound so awful. I wish I could fast forward to Thursday and then to starting treatment again as I feel so restless and scared. Wonderful to hear your trail drug was so successful and long may that continue! I’ll update on how I get on on Thursday xx

Hi LovedbyArchiedog 

I'm not in the same position,  'just' stage 4 breast CA with bone mets and investigation for a lung nodule. I know my brain hasn't been checked as I have no brain symptoms. Not sure if your hospital is the same or if they had previously checked? 

Try not to give in to the fear. It might not be worst case scenario. I know this is terrifying,  but there are treatments and ways to stablise things. I really just want to give you a huge hug. Hopefully you'll know more soon after onc appt and you can slowly adjust again to this new place you find yourself in. 

Sending all the good wishes

xx

Hi Boxoffrogs,

Thanks for your kind message and I am sending you a huge virtual hug. It’s so hard not to be terrified after the shock of my seizures, it feels like my cancer is everywhere. The only symptom I had was temporary deafness and feeling like my head was in a water tank every so often which didn’t come up in any of my searches of brain mets. Even saying the word terrifies me. You are right though there will hopefully be treatments and the worst bit is at the moment while I still wait for a plan. I hope your investigations go well too. I feel unsteady on my feet following my seizures and I used to be so fit and healthy. Now I’m on crutches which is such a new experience for me but hopefully that won’t be for long. Sending many good wishes to you too xx

I feel you, I have a walking stick for bad days now and even 6 months ago I was able to run after my 5yo goddaughter! It's hard accepting such visible aids, but if it helps me do more then I try and focus on it increasing my independence from where it would be otherwise. I hope your walking keeps on improving xx

Thank you, I will let you know how things go. Everything crossed for us both xx