I had a hysterectomy in July 21 for a cancerous fibroid which turned out to be leiomyosarcoma stage 1b. In February this year mets were found on my psaos muscle in my pelvis and my iliac artery. I was told that they were inoperable. I also have non alcoholic cirrhosis (I have never really drank alcohol). I started doxorubicin in April and after the three doses my CT scan showed that both mets have doubled in size. I’m devastated as are my family. I’m starting Gem Tax in two weeks and hoping for a better outcome.
Hi Deborino, I was so sorry to read the latest news. I also have non alcoholic cirrhoses of the liver. I do hope your new treatment works for you.
Can I ask what your Title "ULMS" means please? Keep in touch and keep us posted please.
Love Annette x
Welcome to the incurables group Deborino . I know you will find support and friendship here. We have a book club, art group, baking and gardening threads. There's always someone around if you need a chat.
A x
Thank you for your encouraging words. You can certainly call me Debs. I look really well although I don’t always feel it so it’s hard to think that I’m incurable.
The problem with the cirrhosis is that a lot of trials won’t take you. I also found out that I have Gilbert’s syndrome which increases my bilirubin which then impacts on how much chemo I can have. I fell last week and really hurt my knee which is already shot with osteoarthritis. I’m having to take painkillers which then affects my liver. Do you take any pain medication? X
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007