Got treatment coming,and a bit worried.

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I have a grade 4 Glioblastoma on my brain. It’s been my life for only 6 weeks,but seems a lifetime! Anyway,a good lump of the problem was removed from my brain,and Monday Ivsee the specialist and I’ll be on 6 weeks radiotherapy,and Ivwas told ,constant daily chemotherapy.It appears that this will not go away,and the aim is to slow the cancer down. Fair enough. It is what it is. Right now I am on one dose of steroid and two doses of anti convulsant tabs,daily. I feel relatively well. 

my worry? Not the cancer as such . It’s the after effects of my upcoming treatments that concern me. Potential sickness,tiredness etc. I like my food,and it bothers me I may not. Does that make sense? Does anyone have experience and / or advice please? Thank you for reading. 

  • Hi It just shows how different we all are. As a side effect I've got drug related cirrhosis of the liver. Just another curve ball! It keeps you on your toes! Lol.

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • You couldn’t make it up ,could you? Xx

  • Morning Mumf, your up early, I go to our Maggie's Center normally 12 guy's there not one of use use the same treatment path 4 in remission but being monitored 2 had different operation's the rest are receiving medication but all different,

  • Hope your appointment goes well today  

  • Morning Mumf hope all goes well today, xx

    Moi

  • Hi Mumf I'll be thinking of you today hope it goes well.

  • Thanks everyone. Just waiting to see doctor right now. Speak soon. Xx

  • Hope things go smoothly, first one always the hardest that's for sure Thoughts are with you, 

  • Hi Mumf hope you got on OK. Ulls, I hope you enjoyed your day at Maggie Centre. The one nearest me has no designated parking area. I went a couple of times but my husband had to wait and park elsewhere until  called him to pitch me up, so not been back, it did look good. Marie Curie Hospice were great and only 10 minute drive from home.

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hello everyone. On Thursday I get a mask made for my head,ready for radiotherapy,then blood tests. .In 3 or 4 weeks. I’ll have chemo at the same time. Half strength.6x5 days in a row. Then mega Chem Temodal. That is 5 days per 28. 6 x. Scans in between,doctor in between. Anti sickness drug too. The doctor spoke of “seeing how things are in 12 months” which is somewhat cheering! Smiley.Of course,I was warned that the Glioblastoma may go vicious and overtake the treatment.Indeed it could. There is the chance of 6 more Temodal sessions after that,but obviously if I can stand it! 

    And that’s it really. Eating carefully,exercising gently,and that’s about it. My biggest concern is potential memory loss. This was a bad symptom initially for me,and it was a concern. We shall see though . Xx