Got treatment coming,and a bit worried.

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I have a grade 4 Glioblastoma on my brain. It’s been my life for only 6 weeks,but seems a lifetime! Anyway,a good lump of the problem was removed from my brain,and Monday Ivsee the specialist and I’ll be on 6 weeks radiotherapy,and Ivwas told ,constant daily chemotherapy.It appears that this will not go away,and the aim is to slow the cancer down. Fair enough. It is what it is. Right now I am on one dose of steroid and two doses of anti convulsant tabs,daily. I feel relatively well. 

my worry? Not the cancer as such . It’s the after effects of my upcoming treatments that concern me. Potential sickness,tiredness etc. I like my food,and it bothers me I may not. Does that make sense? Does anyone have experience and / or advice please? Thank you for reading. 

  • Hi Mumf, I'm so glad you have a good attitude about this, I think it makes all the difference!

    The docs can only guess how long you have, everyone is different. I was given 5-7 months. Then my oncologist found a trial I was suitable for....that was in 2013! It's not been easy but I'm still here, much to everyone's surprise.

    Yes please do let us know how you get on!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Oh I will tap in here. I’m not a big conversationalist,but I am finding the comments here  VERY positive and helpful,I really am. The specialist nurse I communicate with says the positive is so helpful. Since being told about my illness,my attitude has changed beyond belief,and only 6 weeks! My friends and family cannot believe I am chilled out about it. Us cancer patients know though ,don’t we?

    sure,it’s cancer.Mine isn’t going away,but I am reading of longer times predicted,and I hope to be in that club! This site is so helpful,as we are all in the same boat,and experience and knowledge and feelings that people speak of are SO helpful. If we all met for real,I know we would be proper friends for sure. Will speak soon,and take care .xx

  • I think the challenge is you are advised a long list of side effects that have been associated with the treatments.  They have to tell you.  But on the other side of the coin, everyone reacts differently to these drugs/treatments and no one gets ALL the side effects.  It's all a big unknown which causes the uncertainty.  

    I'm on immunotherapy.  I got concerned reading all the side effects.  I thought I might be camped in the toilet forever more.  I got a rare side effect not even listed in the drug notes.  It's easier once you start because then you can gauge the impact on your system, adjust etc.  Saying that, I do feel a bit of a fraud for typing that because my immunotherapy is baby treatment compared to chemo and RT.  Good luck.

  •  Baby treatment? No. Cancer is cancer! As you say, we can all react differently. Anyone here,is here for a reasonMmum ,that’s for sure. What you have said helps me too. 

  • Hi Mmum, I've had the pleasure of Radiotherapy with no side effects at all, chemo is being held in reserve for me, the list of side effects are there just to scare the life out of us, I do have some side effects to my medication, but living with them is way better than not having the treatment, Live long and prosper to all of us.

  • That’s the way! Another positivity. Thanks. 

  • Some people say you are a glass half empty or a glass half full person, wrong my glass is always full to the brim, I do so like a party   as I can't change either the past or future I don't worry about them, live for today and enjoy what we have.

  • Well said Ulls. I let my doctor decide what to do with me, I do it. My job is getting on with my life. I was surprised when my oncologist apologised for my diabetes as its a side effect of my treatment.  xx

    Moi

  • I had the same experience as Ellie.

    I think I remember 4 days where I needed pepper, brown sauce, chilli powder, that sort of thing, then three days when everything tastes lovely then I stuffed myself until the next session.!

    Its doable .

  • My diabetes is a side effect as well