Immunotherapy start date.

I'm not surprised you feel like this after getting yourself ready for Monday. I'd be the same. It's likely to be some piddling reason: I don't know how they receive these things but it could be something as irritating as the Royal Mail strikes perhaps causing a delay? I would have thought motorcycle couriers a better option to get such things to patients. Anyone know? I'm sure mmum is right and that once you've been accepted the treatment won't be withdrawn. That would be beyond cruel.   Rainie x

Sorry to hear this, hope Monday is better for you, as others have said, i cannot see how they can with draw it, once you have been offered it and accepted, Just a little bump that will smooth itself out, i am sure.

I've been on immunotherapy for a year little to no side effects. Also have the attitude "what's the worst that can happen?" so enjoy life your way 

Well after a week of to-ing and fro-ing am slightly close to knowing what's going on but it'll still be another couple of weeks! As this is a new treatment for my type of metastatic cancer in Lincolnshire, if not the UK, all of the staff have had to undergo training, not for the infusion but more looking out for side effects and probably the questions they ask pre-treatment. They've also had to sign new contracts it seems??! Once that's all done the pharmacy team can order the drugs. The drugs come from 2 different suppliers so they've got to be co-ordinated. Something also needs to be signed off by a higher up in the health trust.

I'd talked to my chemo nurses, who'd referred me to the scheduling team who then asked my Oncologist or the pharmacist to let me know what's going on. My Onco called me at 15.40 and clarified things, I said sorry for all the extra work being caused. He said no apology needed. He also explained I would only receive the immunotherapy infusion for 2 years but would continue to get the tablets as long as necessary or until toxicity builds up etc. I thought is this it, my stay of execution for just 2 years than I remembered, I'd read somewhere immunotherapy is only done for 2 years. Supposedly the body's immune system should kick in to do the job by then?

I mentioned my pain's back. When I saw him on 13th September, I only had twinges, now I need pain meds about every 4 hours and opened a bottle of morphine last night.

Hopefully I'll hear more by the end of the week.

Hugs, Barb xx

Hi Mrs BJH

I had immunotherapy, and i only got for the two years, i finished in December 2019 i had Pre, and only lat year had 13 sessions of radiotherapy for slight growth,

Hi Bard glad things are starting to move closer to you getting your immunotherapy. Hope the morphine   eased your back pain. Hang in there Bard sending hugs xx

Moi

Hi Barb,

This is a bit of a saga isn't it, but it looks as if you're almost there, so hang on in there. If this gets you two years that it will have been worth the wait. Is the pain now under control ? That takes it out of you, so I hope it's one thing dealt with. Big hugs. Rainie x

All the benefit with immunotherapy is in the first two years.