Immunotherapy start date.

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Hi everyone

Yesterday had a very welcome phone call inviting me to start my Immunotherapy treatment on Monday 3rd October. I can only thank my Onco who must jump through hoops for me.

Have the blood test next week and a CT scan after 3 cycles. I'm determined to present my body in the best possible health (LOL) so have given up my beloved 2 daily scotch and cokes. I admit I had one after the phone call. 

Out of interest do any of you have the odd tipple or are you alcohol free? My Onco says a weak scotch with lots of coke and ice won't be a problem. There's not a lot of things I enjoy nowadays and I hate the thought of giving it up but wonder would I be daft if I continued to have one?

Be interesting to hear your thoughts., Hugs, Barb xx

  • You have just discribed most of the North East including where I live, Yippy a fellow northeasterner, as we all have our own nick name denoting where we're from may I ask yours, I'm a Mackem.

  • Hi so pleased you have a start date for your immunotherapy. I still have a little  wine about twice a month and enjoy it. xx

    Moi

  • I would be either a codhead or a smoggy Ulls. I've been called worse than both!!

  • How about Boro girl

  • Now now Monica, good job your Greek, I'm not a smoggy, they born in Cleveland, Elliekate was referring to herself, her some what cheeky self I have to say, she's as bad as you are when it comes to being lippy 

  • Totally fed up today. Got a call yesterday from chemo nurse saying my immunotherapy won't be Monday as there's a problem with delivery to the Pharmacy. Will know more on Monday. I was getting myself all psyched up for the treatment. Now I'm worrying it's being withdrawn to NHS compassionate cases, they'll tell me I need to go to the Royal Marsden or Clatterbridge etc, etc.

    My mind just will not stop churning things up. Lay in bed all last night staring at my eyelids, just couldn't switch off.

    I'll update Monday!


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  • Oh no, bummer!  This has happened to me.  Dose 1, I think.   Like you, I wasn't impressed.   It was just a problem with my local hospital not having one of the immuno drugs onsite.  It was 30 mins down the road though in my regional oncology centre.  Just a delay of a single day.  Yours sounds similar?  I do think you're over-thinking the root cause though and I can totally understand the train of thought.  You've been accepted - they won't just withdraw it and tell you "supply issue".  

  • Hi Barb, hopefully it's just a delivery problem, it's horrible having to wait not knowing, no wonder your having sleepless nights.

    I've just been told that I now have cancer in my neck and waiting for more scans, then I'm told I'm looking good, hard to hold temper, I'll be thinking of you and hoping everything turns out ok.

  • Hi Barb sorry to hear this, I hope its sorted out soon. As Mmum says you've been excerpted and they won't just dump you. I've been on immunotherapy for 27 months and it's never happened to me but I go through Clattabridge not a local hospital. Thinking of you, take care xx

    Moi

  • It's been made worse by the treatment day being on the first day of the week.  It's meant they've had to phone up on Friday so you've got Sat/Sun to mull it over.