I've recently had surgery for cancer in my womb and lymph nodes. My original Consultant was on holiday when the operation was scheduled, so it was performed by his colleague. I only met the replacement Consultant 2 hours before surgery, and he dropped the bombshell that it was an incurable cancer. He visited me several times while I was still in hospital (9 days) and told me that the cancer would return, at the moment I will soon be having radiotherapy to hopefully kill off any remaining cells following the operation.
I am limited in what treatment I can have as I have heart failure, and stage 4 kidney failure, although the Oncologist did mention the possibility of some sort of hormone treatment in the future.
I have been working hard at keeping a positive outlook. However, yesterday I was looking at my Patient Record online, and saw a letter from the Consultant to my GP, which had not been cc'd to me. It described my prognosis as "terrible" and states that "she is not likely to survive this cancer". It all sounded a but brutal, compared to what I had been told previously, I guess that when they're talking professional to professional they don't need to sugar coat anything.
I'm in shock, as the picture is a bit worse than I imagined. Need to re-evaluate and get back on track to have a positive mindset - which is very hard sometimes!
Hi - thank you for your response. Apparently the lymphadenopathy passed all the way from the left external iliac nodes, past the commons and up to the para-aotic nodes at L2. There is a malignant node fused onto the common iliac vein which could not be dealt with by surgery. Camcer is Grade II. FIGO stage 3c2 (whatever that may mean),
I am starting a course of 25 days radiotherapy next week, and there is the possibility of adjuvant chemotherapy, once they have seen how my kidneys are coping with things.
Onwards and upwards!
Hi OvertheRainbow.
Those Consultant Letters to the GP are awful aren't they? They don't mince words.
A copy was posted to me as well as to the GP.
After I read mine i found it so upsetting I locked it away in a drawer - where I wouldn't have to look at it and I could pretend it wasn't there.
I have files lying around the house with all my various 'cancer paraphernalia' and appointments in, but I couldn't bear to have that letter close to hand where it would be reminding me of the severity of the situation 24/7
In fact not so long ago, I found all the paper work and leaflets overwhelming and went on what I can only describe as a Shredding Frenzy.
I shredded just about everything, including the dreaded 'letter'
I wouldn't recommend it. I needed 'the letter' the following week to complete a blue badge form!
So my advice would be, if they do send you a copy, read it once, or twice, f you have to, put it WELL away and forget about it. Xxx
I've just finished 25 sessions of radiotherapy, I've got a scan on Thursday to see how things are. I'll be having blood tests to see if my kidneys are strong enough to cope with some chemo - fingers crossed for a positive result!
Hi OvertheRainbow.
Crossing fingers that your kidneys are strong enough for chemo. And if they're not, I'm sure they'll have a plan B. X
All the best for Thursday, I hope it will be good news for you. I have phone appt Friday with consultant to see what else can be done for me now my cervical cancer is incurable..
I hope the call goes well, please let me know what the plan is. I see from your profile that you have already had Radiotherapy and Chemo, so ae a bit further down the road than I am. Take care.
I wasn't able to have Chemo, as my kidneys weren't up to it. My first scan following Radiotherapy showed some improvement, with cells shrinking. My next scan is mid-December, and I'll be seeing the Oncologist on 28th December. Fingers crossed.
Hooe you get good results from next scan, sending hugs xx
Moi
Hi Over the Rainbow, sorry to see your still have problems, I hope you're next scans give you a better result, my thoughts and prayers are with you.
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