Results back today

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Hello all

I got my PET scan results today. It confirmed that there are cancer spots in both lungs, but there is no evidence it has spread elsewhere. The head and neck cancer seems to have responded well to radiotherapy. So I have signed the consent forms for immunotherapy. I have been told my Combined Positive Score (CPS) is very high, so I am more likely to be a responder (still trying to understand this, but it feels like the one positive in a long time). I start on Nivolumab in a few weeks, on a 4 week cycle. The next scan is in 4 months. So I now have plan.

Nigel

ellie 73 over 3 years ago

At least you now know which way ahead you are going.

I did not have Nivolumab but others have and i hope they come in for you.

I did have a different type of immunotherapy every three weeks and i completed the two year course,

I finished it Dec 2018 had a good out come, but slight growth last year and had 13 sessions radiotherapy..

I wish you well, have to say i did have chemo before the immunotherapy which turned out for me to be so much kinder, i have lung cancer.

Take Care Ellie x

ellie 73 over 3 years ago in reply to ellie 73

immunotherapy was kinder

EG1 over 3 years ago in reply to ellie 73

Thanks Ellie

Pet1968 over 3 years ago

Hi , i'm glad it has not spread elsewhere...i am on nivu since August 2015 ( i'm in Australia) did get rid of most of my tumor and i am in the stable mable club ever since. Side effects i had, dry mouth ( like sand) and Thyroids are playing up , on meds for that. But way better then chemo. So fingers crossed for you !!! Pet

Pet1968 over 3 years ago in reply to Pet1968

Oh i forgot..and i had a very itchy rash on my back, but steroid cream killed it.

EG1 over 3 years ago in reply to Pet1968

Hi Pet

Thanks for replying. It’s really encouraging to hear of good results and I hope it continues to work for you.
Many thanks

Nigel

Rainieday over 3 years ago

That's so good to hear Nigel. Now you know what's what and you're not left wondering. I wish you the very best and hope you respond really well to the therapy. Keep positive. Time to give yourself a treat. Rainie x

EG1 over 3 years ago in reply to Rainieday

Many Thanks Rainie.
Nigel x