My apologies for my recent absence from our little community – there are two reasons.
Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…
Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…
And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…
It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…
Much Love & Huge Hugs
Stay Strong
SiT
I am happy to join in the haunting of both Mr Johnson ( no cuddly "Boris" for me- and anyway Boris was my old rescue staffie's name and I refuse to sully it) and Murdoch. Whole list of people who deserve haunting but is a long one.
x
Quite like the idea of haunting Mr Johnson et al, really feel they have ruined our children's future. I get very cheesed of each time I get a clinically extremely vulnerable letter signed by "Matt" I may haunt him as well.
Sarah
Hi SiT & everyone, Now, I'm getting a bit disturbed about all this "haunting" people are talking about! Don't you realise you need to be dead before you can haunt anyone, even old Boris! I am just starting to feel a bit better, after a bad patch and the last thing I want to hear is of anyone bowing out or they will have to deal with my anger, and you wouldn't like me when I'm angry!
By the way, what kind of mask are you thinking of wearing? What about a Lone Ranger or Zorro mask! Instead of a horse, you could use an e-bike or electric scooter!
Love Annette x
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