“A SiT’s Progress”

FormerMember
FormerMember
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My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • Hi 

    Not sure if Annette   wants to see your bike Simon or you in your lycra. It's all coming out now Annette (hopefully not all lol). 

    Tvman

    Love life and family.
  • FormerMember
    FormerMember in reply to tvman

    You've got Annette bang to rights. She is so easy to see through!

  • FormerMember
    FormerMember in reply to FormerMember

    I can only say... "Do NOT mess with the Matron!"

    Also... no lycra in this house & may I refer you back to the man with the PFLG's for your dressing up party... Tata

  • FormerMember
    FormerMember

    So…

    Just had conversation with onc and body tumours remain stable & 2 of the 3 BM’s have reduced by half but the I at the back is the same size…

    Still feeling awful but hey…

  • Another stable mable that’s good news and as the saying goes 2 out of 3 ain’t bad

    hope you feel better soon 


    Richard

    be safe, be nice, be you 

  • FormerMember
    FormerMember in reply to FormerMember

    This is probably not everything you want but it sounds brilliant from where I'm sitting. I reckon it also makes up for the unpleasant treatment you have endured. I know you don't drink but just look at a pint!

  • There you are SiT .....

    I know this is not exactly what you wanted to hear, but there are more positives here than negative. 2 tumours have shrunk, the others are stable mable. Blush

    Lets hope aunt Mable is kind to you for a very long time x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Brill news!!!!!!!!!!!! have sent you a pm xxxxxxxxxxxxxx

    Flippen
  • FormerMember
    FormerMember in reply to FormerMember

    Good news! Hope you start to feel better soon.

    Stuart x 

  • FormerMember
    FormerMember in reply to FormerMember

    Thx everyone - much appreciated