I sometimes wish I hadn't asked but my consultant handled it really badly. They sent me home with the 2 months with no treatment then dragged their feet leaving me to stress. I got told on the 8/6, but then they sent me a letter dated 10/6 telling me the 8th was cancelled and my appt would be 27/7.....horrific to think they were happy to leave me that long...yes I have read many comments on here from people that have continued way past prognosis. I think it's just such early days still xx
Sorry to hear about the liver met Angie, hopefully your upcoming scan will help them decide the best treatment options for you. Macy and I are sending you and Lilly hugs from across the pond.
You have definitely found a good forum to be in, the members here are truly amazing, and I feel like it's more of a personal connection versus cancer specific groups on Facebook. My family and close friends have been here for me through it all, but talking with others who truly understand these life changing journey's with cancer makes a world of difference with accepting this reality. Sometimes I feel like the pity party / depression is never ending, but not keeping the fears and concerns bottled up inside helps.
Hi Stacy, oh my after reading your experience I am ashamed at my pity party. You truly are a warrior! I have joined a few facebook groups and even dipped into Reddit, but this is by far my favourite forum. Everyone is just carrying on and are so encouraging. I also have to remind myself that my family are also going through this. I was snippy with my sister yesterday..but then had to stop and think how this all is for her. She will take me to every appointment. I guess I have always been impatient and just want to speed up the acceptance part. Not sure I've been through anger yet. Keep well xx
It is terrible that you are having such a delay for the start of your radiotherapy . It is stressful enough without the added NHS backlog. Would you consider writing to PALS of your hospital? They may able to speed things up a bit for you.
I remember back Aug 2024, the hospital found CT scan indicate a possible recurrence . I have to wait until October to confirm this. By then I have to have new scans as it has been so long. At the end it is too big for radiotherapy and I was told it was chemo only.
In December last year I went for a surgical consultation privately and was told surgery is indeed possible. Now I have one more lung nodules to be ablated next month and would be officially in remission. If I stuck with my NHS hospital I would be dead by this time next year.
Hi Stella, I have my peg fitted on 30/6 then week to first treatment. I don't think it will be any sooner. They are obviously not concerned. I'm keeping an eye on neck as it is growing..but maybe I'm being paranoid. I hope things settle once I start and hopefully 'bob' as I call it will start shrinking. This would ease my neck and shoulder pain...although I'm aware there will be other issues to deal with. Pretty scared of the radiation to be honest xx
I'm hanging in there, but I've been going through a lot of emotions since the prosthetic process started. As I have laid here in this bed for months, lost in my thoughts and emotions, I knew the prosthesis was going to be a hard part for me to adjust to mentally, but there's no words to describe it. They brought it here twice last week for me to try on and I didn't wear it for very long either time, but it was enough for them to continue to make fitting adjustments around my stomas and other places that were obvious issues for me. They're hoping they'll be able to leave it here with me soon so I can start wearing it a little more each day, and see where more adjustments might need to be made.
My new wheelchair has been here, so as soon as I can get used to wearing the prosthesis for several hours I'll be able to start taking day trips, and going home to see Macy and everything that has been changed at our house is top priority for me. It will be good for my mental health more than anything, and I'll be able to see how my raised gardens are doing and just being home again will be a recovery milestone for me.
Yes, I've been enjoying the World Cup games so much, especially all of the chants from the European fans. I spend a lot of time watching TikTok videos, and seeing how Europeans are enjoying our culture, restaurants / food, businesses, and landmarks has been fun for us and a lot of the staff here to watch. I really like how the Norwegian fans row together in the stadiums, plus seeing the Scottish fans singing Country Roads together, or even their own chants at one of our baseball games was great. Or just the sure amount of energy with the German fans! English fans started singing Sweet Caroline at a rodeo in Texas, and the energy from them is nothing short of amazing! The Netherlands song gets stuck in your head, and I find myself humming it long after I watch them all dressed in orange going to the left and then to the right in a massive crowd of fans. I know a lot of people in the US were amazed and humbled by the Japanese fans and how their fans picked up trash after a draw. I think overall the World Cup games have been such a great experience for people to really come together and have a wonderful time. My days aren't always good for me, but watching the games and seeing people really come together has helped take my mind off a lot of things.
Hi Stacy I really cannot imagine what you are going through. You and your lovely Mom have been in the hospital a long time. It does look now that with the new wheelchair and prosthesis you have turned the corner and will be on a countdown for going home. I really hope and pray that it will be soon. I am glad you are enjoying watching the football. I am going to stick my neck out here and say I don't really like it, prefer rugby. Not a popular opinion I know, sorry to the footy fans. We are supposed to have a heatwave here, not looking forward to it. What has your weather been like? Sending you and everyone love.
