Been a while

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Hi guys it’s been a good few months, been a rollercoaster of emotions watching my daughter get married now waiting on the baby coming Grin due September . I’m just terrified I’ll start going down hill and won’t be able to embrace all the joy

my back has been killing me for a good while I’m on the 7 day patches and im not finding them that great still having to take oromorph as a top up. Cant sleep tonight so just having a wee rant 

angieX

  • Hi Angie. How wonderful to watch your daughter get married. Our eldest was married 18 months ago, and it truly was such an amazing day, a day that you feel lucky to still be part of. I can understand your concerns with a grandbaby on the way, but what a joy! It will be wonderful for you all. 

    I am sorry you are struggling with back pain, and everything always feels worse when we can’t sleep. I don’t know why we over think things when we are laying there trying to sleep, but sometimes it is so hard to switch our brains off! I have woke early again today, and have been laying here for a couple of hours, I hope you managed to get some sleep. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Thank you Chelle your right during the night our minds wonder hopefully get the back pain sorted and that’ll be me happy for another few months Blush we really need to sleep Zzz 

    angie

  • Hi  

    Congratulations on your daughter’s wedding and baby to be. Is it your first grandchild? I was delighted when both my daughter in law and daughter had babies (both boys) 2 months apart last autumn. When you are on the Hotel California train that is incurable cancer (“you can check out any time you like but you can never leave”), these little milestones really matter. I thought I wouldn’t get to meet grandchildren but now I have two. 

    I doubt if any of us are sleeping too well at the moment with the heat. Nights of not sleeping well allow the mind to spend too much time catastrophising. I hope you can stabilise that pain and look forward to the new arrival.

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  • Thank you, lol liked that hotel California that exactly how I’m feeling right now Upside down got rid of the patches I don’t think they are a good fit with me back on the mst continue hopefully starting to help. Iv got the wedding reception to look forward to it’s in 2 weeks keep saying to myself  make that it’s another milestone ,

    angieX

  • Hi Weglasga woman, when my spinal stenosis started just 3 months after my cancer diagnosis I had some horrendous back pain and my GP started me on patches, increasing the strength gradually but they didn't even touch the pain. From there he started with MST, again increasing the strength until I was taking 130mg twice a day which most medical people were aghast at the high strength. Did the MST help? No is the answer to that. 

    I had a few appointments at the Chronic pain clinic and the doctor there brought the strength down to 50 mg twice a day which I'm still on and I'm in constant pain as soon as I stand up so I'm resigned to the fact that pain is part of my life now. 

    Take care Weglasga woman and enjoy the wedding reception 

    Tvman x

    Love life and family.
  • Morning tvman

    yea it’s bloody awful having to just say iv got pain just need to get on with it. Im lucky the mst seem to be working again 2x a day along with pragabalin it’s at night getting up and having to take oramorph as that’s when it seems to be playing up hay ho got lot of good things going on so I’ll suck it up so I can enjoy the better things in lifeGrin you have a great week 

    angieX

  • Thanks Angie, I take pregabalin too as well as sevredol. I'm still able to work in the garden although not for long periods because the pain builds up until it's just too much. Then it's time to rest and admire Grinning. Hay ho things aren't going to be done otherwise. When the going gets tough....

    Tvman x

    Love life and family.