Oesophageal stent

Hi Puddock, and thank you, no I didn't sneak off, but would have done this evening if I hadn't been discharged,  it's good to be home too. After Lesleys scan tomorrow, we're booked into my favourite pub for dinner, an early father's day  present. I hope you've had a lovely day my friend, 

love Eddie and Sheila xx 

Welcome home Eddie, enjoy the peace and quiet.Hospitals are noisy places.

Just rest now x

Awww thank you Pepperpot, its good to be home, but I'm  never on a ward in hospital, its usually Obs, which I kinda like, or critical care which is toooo quiet.

What have you been up to today my friend, not a day to go outside here, hopefully you fared better.

Eddie xx 

Ohh Obs ward, focus of attention eh??

I've been resting and improving.Last night was a tad uncomfortable as I couldn't seem to take a deep breath without pain, in the end I gave in and took some Oramorph and slept.I think it was the stent expanding again as today I can take a deep breath easily.Walked the dogs ( we now all 3 of us have Buzz cuts so we are easily taken care of for next couple of months) 

I'm just enjoying being here quietly.I have no committments till next Friday and am to chase Cycle1 on Wednesday.. best to get Herceptin started now and know the score.This brutal episode has definitely changed my view about my future and what I will and will not tolerate.

Enjoy being home Eddie x

 Pepperpot, I like Obs, as the alternative is CC, sorry to hear you had a tough time early on last night, and it's commendable you try to soldier on without pain relief, but while your stent is still expanding, is surely when it's needed most, did they give you any breathing exercises to do, or swallowing exercises?.

It's good to hear your breathing better now, and have been out with the dogs, and that's fab, you all have buzz cuts lol.

I think those of us with aggressive cancers need an aggressive treatment, and Herceptin is can be that,  though I thought nice had turned it down on cost issues, good luck and best wishes for Wednesday, and I understand your thoughts on a reasonable quality of life, have you discussed tweaking your meds my friend.

Eddie xx 

Hiya Eddie 

I really must get the hang of this forum because I keep missing lovely messages like yours.

I had Cycle 1 today of Herceptin and CAPOX.Uneventful so far.But expecting to feel tired over next week.LONG day in a rather noisy Chemo suite though so looking forward to peace at home now.

Yes Herceptin was canned by NICE due to costs £15k per treatment per patient.But I've since learned that when the original drug goes out of patent other drug companies can then biosynthesise copies and it is this that perhaps I'm getting? 

As long as it works to give me a bit longer I'm hopeful.

Lizx

Hi Pepperpot

If you are using the forum on a laptop or PC, the page should show, on the right hand side, 4 green boxes. Check the top one! If you've set it to notify you if someone sends you a reply, then you'll always know if there's a message waiting for you.

On the green banner at the top of the page, there's a little lightning symbol on the right hand side. This will have numbers on it if anyone has put a post on a thread that you've posted on. If you click on the lightning symbol, a drop down box will tell you which posts have replies waiting to be read.

Hope this helps! 

Kate

Hope you are managing OK with the stent now!

xxx

Hi Pepperpot, it's lovely to hear from you again, and good to hear your treatment has started, with minimal impact so far, uneventful, sounds good to me, and you can plan for cycle 2, now you know what to expect, and as  for generic copies, many would say their superior to the original anyway, and I will have everything crossed for you my friend, your treatment is the success you deserve 

Eddie xx 

Many thanks Kate think I'm sorted now.

Liz x

Thankyou Eddie x