Oesophageal stent

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Hi everyone I had one of these "placed" day before yesterday but I have to say it's rather set me back as I've been really sick since then.Im struggling with nausea and vomiting, pain is manageable. I kind of wish I'd had more warning there'd be plenty of the red stuff both in the minutes after the procedure and now just coffee grounds each time I'm sick.

My apologies for the squeamish amongst you.Since being diagnosed I haven't actually felt ill, but this Is making me realise that I am actually ill.

I'm managing on Cyclizine and Paracetamol 6 hrly but feel weak and wobbly.Ive lost 4lbs and haven't eaten anything since last Monday.Determined to be ' normal ' walked the dogs at 9 am , had to stop several times in hedgerows to be sick ( thank goodness for foliage!!)

I even had to cancel Cycle 1 because I just didn't feel strong enough to cope.Im sorry to be gloomy but I kind of wish someone would shoot me !

  • Hi Pepperpot, and sorry for the late reply, I'm in hospital, lol, my second home, it's just one of those things these days, so I just go with the flow, and though I'm so sorry you've had a tough time with your stent, as you said being able to eat normally, means so much, and worth a few difficult days, and fingers crossed your bloods stabilise and you feel even better soon, do you have a date for your 1st cycle?.

    The weather's not important when you're stuck in hospital, though it was a mixed bag, sunny spells, showers and the occasional downpour, I know what you mean my friend, I have very low melanin levels, fair/freckled skin and ginger hair, well until it went white and fell out lol, and walking my dog was my getaway, I  still do almost everyday, but going out for hours has been replaced by 10 to 30 minutes, we just need to find what we can do, and not worry about what we can't 

    best wishes my friend 

    Eddie xx 

  • Hi tvman, apologies for the late reply again, all my stents are in my cardio vascular system and all in the last 20 months to get  my heart strong enough to cope with chemotherapy.

    They were all done at St James's, by the same team using nerve blocks, and I was in and out every time in less than 4½ hours, never felt a thing, needed no pain relief after, and felt fine waking up the next day, I  guess things have moved on my friend, if you should ever need another stent, remember nerve blocks.

    Eddie xx 

  • Yes Eddie, I'm sure I had a nerve block or else the wire with the stent on the end would have been excruciating, it was only when he placed it in the heart that it was so painful. What did he do then? He went over to the screen on the desk presumably to check it was in the correct place. I was going to say to him but then I thought they're going to see my heart rate going ballistic so maybe this is how it is. Next time I'm piping up (hope there's not a next time).

    I have had 4 elbow operations and the last 3 were done with a nerve block. I was tempted to ask the anaesthetist to let me keep the block in. I still have pain so much that I can't sleep in the normal position on my side or back. I have to sleep sitting upright. 

    Tell you what Eddie, you get my vote for the bloke who's in such poor health yet still stays so supportive, chirpy and cheerful.

    Tvman x 

    Love life and family.
  • Eddie, you're in hospital, no need to apologise GrinningHearts

    Love life and family.
  • Hi  Rosiee, it looks like we're in a similar situation, neither of us can have surgery, especially with a  GA, and we need stents in the oesophagus, though mines for dysphagia, and I was told today there's a chance I might need one in my pylorus and duodenum, but as you know my friend, in our situation needing and having don't go hand in hand, best wishes 

    Eddie 

  • Hi tvman, are you sure you had nerve blocks and not a local anaesthetic my friend, all my surgeries were facilitated by a tiny amount of anaesthetic injected into the nerve that ran along the artery receiving the stent, often this injection was some way away from the insertion site and totally painless, with the anaesthetic controlling the pain for up to 12 hours, it's so good at minimising pain, thankfully, paracetamol was all I needed, never really been in good health my friend, so poor health is my normal.

    Eddie xx 

  • Yes Eddie, definitely nerve block, the anaesthetist told me face to face. Later that day or the next morning he came to the ward and reversed it.

    How are you Eddie, are you getting home soon?

    Tvman 

    Love life and family.
  • Hi tvman, I got home a couple of hours ago, thank you, and thats interesting about your nerve blocks my friend, can I ask how long ago you had yours, as there was never a need for any anaesthetic  reverse with any of my treatments. PS it's lovely to be home, though Sheila saw through my sympathy card, lol, how are you my friend,  I hope it's warm and sunny for you, we have the heating back on, 

    Eddie xx 

  • Welcome home! Hope you didn't sneak off from the ward without permission??

    Enjoy the rest of the weekend, and I hope the scan goes smoothly tomorrow for Lesley.

    xxx Kate