Treatment halted for now

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Hi I have been receiving bevicazumah (excuse spelling) for a few months every three weeks. Recently I keep having too much protein in my urine and two weeks ago the same again although my bp was far too high so i wasn’t allowed treatment. This week I’m doing another 24 hour urine specimen today and first thing in morning on Tuesday I have a ct scan, blood tests on Wednesday a face to face appointment with my consultant on Thursday and they will decide if I can have treatment on Friday or if they have to look at other treatment options for men if there is any. Has anyone else found their self in same situation? I am terrified incase this is the end of treatment and I’m trying to put a brave face on for my kids but I have no one else to talk to about this thanks if you’ve managed to read this far and would be greatful to hear from anyone else going through similar 

  • Thank you Karen, your good wishes are appreciated, and no need to apologise, we all make mistakes on this journey.

    you did mention your 1 year prognosis, and I'm glad to hear you plan to be here long after that, I too have been given a prognosis, which I ignore, you can't live your life with somebody's guess of your time left hanging over your head, good to hear you've got your thoughts together, here's to the good days, and accept there will be bad days, the good people on here can help you through them, will pass on your regards, I hope to see you post before we meet, maybe introduce you to someone else who will be at the meet up, I'm sure you will get on'

    love Eddie xx

  • Hi Teresa22 (Karen) It is good to hear you are on treatment and seem to be doing well.

    No wonder you are feeling better WOW 2 new granddaughters in 15 weeks, that’s amazing, how lucky are you! All you have to do is look at a grandchild and your spirits lift and your heart melts. I am lucky enough to have 2 granddaughters and 1 grandson, it’s magic! Also now you will have to start looking for a wedding outfit, you are going to be busy!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Karen, I hope yo are doing ok, we've had our MDT meetings and have a date for the meet up, Fri 22nd November, looks to be the likely date, hopefully will be able to confirm it soon.

    love Eddie xx