Hello you lovely people. I saw my oncologist on Tuesday who confirmed that I am now classed as incurable. I have now received a letter, in my online records, stating that I have a rare genetic mutation, EGFR. My lovely oncologist has said that she will apply to the board for hi cost cancer treatment, if I get offered surgery at the liver specialist hospital next Tuesday! Do any of you have any experience of dealing with this board? Many thanks in advance.
Hiya I think the process you are referring to is the standard process for getting approval for any cancer treatment. And not just cancer, I believe it's for high cost drugs too for other conditions. It's segregated by NHS region, so there's one in Scotland, one in Eng & Wal, and another in NI. Each approve applications from hospitals according to where people are located. The board then looks at their approved treatments and signs it off, and tracks the future expenditure against budget I assume. It's the "Scottish Medicines Consortium" in Scotland, where I am. You can go on to the websites and see what is approved for use and they regularly add to it, or amend what existing drugs can be used for.
This happens in the background as standard. My consultants didn't mention it to me. It's just admin. But this sounds like what you are referring to.