Rare genetic mutations

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Hello you lovely people. I saw my oncologist on Tuesday who confirmed that I am now classed as incurable. I have now received a letter, in my online records, stating that I have a rare genetic mutation, EGFR. My lovely oncologist has said that she will apply to the board for hi cost cancer treatment, if I get offered surgery at the liver specialist hospital next Tuesday! Do any of you have any experience of dealing with this board? Many thanks in advance.

Jools63 11 months ago in reply to Pet1968

Sorry I’m being overly sensitive at the moment! I have been offered surgery. There was no suggestion that it was not going to be offered, so I’m a bit annoyed with the oncologist. I know how lucky I am, and have just been given a date for my pre-op!! I will be given a date for surgery when I go to that appointment. I read your profile. You certainly have been through some tough times. I hope you are still well.

Pet1968 11 months ago in reply to Jools63

I'm so glad you will have the surgery...best thing ever!!! And yes i am still doing fine, will have a new scan this month, so fingers crossed.