Hi everyone, I had my latest blood picture for my bone marrow cancer on Friday last week. I'm pleased to say that I'm stable. My platelets are low, but not at danger level. Likewise, but closer to danger level, are my haemoglobin level and my neutrophils level.
I also have a rare blood condition called haemachromatosis and my reading should be around 50 and my figure is more than 650! The normal method of treatment is by blood removal but as I can't have that because my blood levels will be even lower, the method of treatment will be by iron chelation. In simpler terms it will be by taking tablets that help the ferritin (iron) to attach to other compounds and, well to be blunt, come out with my poo. The haemotologist took time to explain the risks which are quite severe and involves being checked for liver and kidneys efficacy operation and also more concerning, having my eyes monitored. for retinal degeneration. These checks are needed to be performed every 3 months..
Strange, but also common are treatments for one ailment, can affect other parts of the body..
Keep well and stay safe everyone.
Tvman xx
Hi Sarah Salis , thank you, I'm just keeping my head above water as far as the cancer is concerned.
Haemochromatosis is a different matter though. I've done some research about it and to be a carrier, only one parent has one of the mutated genes. My mutated gene is called H63D. Both my parents must have had the mutated gene for me to first of all have Haemochromatosis and secondly to develop the disease. My brother also has the mutation and when his level reaches 60.or 70, he's in for a venesection whereas I have to have iron chelation tablets. I've been on them before but some kind of miscommunication occurred that left me without treatment for the last 3 or 4 years, tablet wise and side effects monitoring.
I'll be back on track soon.
Take care Sarah
Tvman xx
Anyone having the mutated gene is a carrier but anyone having both parents with the mutated gene will be a carrier and have a 1 in 4 chance of developing the condition/disease. Hope that's clear.
My parents didn't know they had the gene because there was no knowledge of it before they died.
Take care Sarah
Tvman xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007