Bleak outlook

Oh Elysian

I am sorry to hear your news.

Do not give up, there is always hope, we always  look on the bleak side, only natural, and then we get our fighting mode on,  You have some thing to fight for, and that will keep you going, i hope others come in, that may be in the same situation as you, and they will, help you, more than i can.

So please, its not over till it is over, and i am sure you have that fight in you.

My thoughts are with you, 

Ellie xs

Oh Elysian, I'm so sorry to hear that. Sounds like you're young with young children. I hope you can get some targeted therapy and you have good results. There's always a chance of good fortune.

Tvman 

Hi Elysian, sorry to hear your news, it is so hard when you have children to think about. But stay strong, who knows what treatment might be just around the corner, and miracles do happen. So try to stay positive it is not easy initially I know, but once you are able to it does become easier. Hopefully once you are over the shock of what has been said you will be able to think more clearly about the future.

I can’t really give you any advice other than to say we have all been where you are now and have come out the other side. Many of us have also passed our sell by dates and so may you.

love and hugs 

Maggie xx 

I was diagnosed with adenocystic carcinoma in 2009.

I now have mets to my lung liver and base of skull. So the mets are not in my brain.

when diagnosed I had 33 sessions of radiotherapy to my neck and a year ago I had 5 sessions of radiation to my brain and it improved my headaches 

I did not have proton radiation but my radiotherapy was carefully planned to help my headaches and I have not had long term side effects from those 5 doses 

I hope you can have some positive treatment xx

The additional shock of it returning is I think even harder sometimes to process, especially if there's been a long period of remission in between, but as others have said, things turn around. It's natural to have bleak thoughts now, but there is always hope that there will be 'front-line' treatments and , if not, then delaying treatments that buy time. And as many can testify, in buying time, another chance can come along and put you on a trial that might just help you turn that corner back to stability. So please don't write yourself off. Equip yourself with the knowledge you need and find out what the possibilities are. Do let us know how things go. Rainie x

Sorry didn't mean to flag to moderator I was falling asleep and must have pressed it. 
please don't give up, I thank everyday that I wake up and am here to fight another day. Hug's to you xx

Hi Mom of five, Don't worry about pressing the wrong button, personally I think the Flag to Moderator should be on the far right hand side, so that it cannot be pressed by mistake as it happens often!

Hi Elysian, Let's hope the mets in the brain won't cause any problems. Loosing your Driving License is bad enough!

Since your first dx in 2016 there have been many new drugs and treatments developed so I hope they find one to suit you!

please let us know how you are doing!

Hi again Elysian, I meant to say, if the notifications coming to your email are getting too much for you then you can always turn them off.

Then when you log in, press the lightening strike in the upper right of the page, click view all and it will give you the most recent posts, so you can read them and/or answer them as you please!

Thank you Ellie.  I know I will feel better particularly when there is action to focus on.  I will still keep fighting and living life the best I can