So after the radiotherapy they said issues could get worse before getting better so a bit of decline in leg performance was expected. New drugs took forever to get to me but I was able to start them on Monday. Today legs rubbish pain in back horrible, no urine output and raised temperature. So call the assessment line and called straight in.
Had blood & urine tests, ECG,MRI and regular obs. catheter installed and now feeling a lot better except the legs are still rubbish
they have doubled my steroid dose so I’m guessing sleep isn’t going to play a factor for a while
anyway how’s your day been?
Hi Richard, haven’t checked in for a while & your post was the first one to pop up. I’m sorry you’ve had such a tough time. It hope it can only get better from here for you. I’m also in hospital having my chemo for 5 days. Nothing like your own bed and surroundings.
All the best to you
Fiona 
xx
