Liver met pain.

Yay!!! I bloomin hope so.  

Love to see you in the stable Mabel club again, Lil

Hi, I was on Dabrafenib for over 3 years but I just had a problem with extra skin on my feet, no hand problems at all. I went to a Specialist Podiatrist my Oncologist found. I went every second week and she would scrape away the excess skin. It felt like I was walking on pebbles and grew so quickly even the Podiatrist was surprised. I had it for over a year after I stopped the drug and now, just every now and then, it flares up again. I phone and the podiatrist sees me quickly, it certainly makes a difference. I've tried numerous creams and gels and they work for a while. You just have to keep trying until you find something that works. Good luck!

My CT showed growth in all my mets lung and liver 

I have been looking at vaccines but don’t seem to be able to access one for my mutation. It is possible to make a personalised vaccine from your biopsy.

However I have a mutation SF3B1and there is now a drug licensed in the uk for this mutation it is a subcutaneous injection of  reblozl used for anaemia every 3 weeks 

I hope my oncologist will let me have this. It would be good to have some hope for a treatment that works xx

That sounds hopeful Ruth. Will you be able to see your oncologist soon and get a decision? Hugs.  Rainie x

He said for me to e mail him the information and he will look at it when he does his admin on Friday x

Fingers crossed for you then. x

ruthjp im so sorry to hear your mets are growing. i will keep my fingers crossed for you. i hope your oncologist can get that vaccine sorted for you. Let us know how you get on. 

Ruth I am sorry to hear your news. I have everything crossed that you will get some better news about this vaccine from your oncologist. X