Liver met pain.

No its not nice at all. i have had to let my clients down as being a hairstylist i kind of need my hands and feet. Still onwards and upwards. thank you all for being here for me. 

So sorry to hear about your poor feet. I hope they're beginning to heal. Can you ask the doctor Lily if there's one of those spray treatments which numb things while it heals? Might make you more comfy.  Big hugs. Rainie x

Hi lily0403, really sorry the hand and foot syndrome was so bad. I never suffered anywhere near as badly as you, but I can say that after stopping capecitabine in Dec my feet and hands are no longer purple and tight feeling, so good luck in recovery. I was on paclitaxol for 2 years and didnt suffer any major side effects. Hope it works for you.

x

Hi Lily,

I've got liver mets and have been getting pain there on and off since I joined a trial in 2017 taking Dabrafenib and trametinib .

It's rarely, totally debilitating but often enough for me to top up my oxycodone. No-one has ever given me a good reason why I get it. I had a painful liver biopsy in 2017 which may have caused it, and one of my registrars suggested it was "cancer cells dying"!! I also occasionally get pain where my other tumours are but not as severe.

Sorry not to have an answer other than analgesia and I hope yours settles down.

love M x

Hi Mark. How is the trial working for you.? My pain has settled a bit but that's the morphine I think   

Hi Lils,

Well, it's kept me alive!! When I started the MSR was 6 months so I'm living well beyond any reasonable expectation which is a bit weird! I get pretty bad side effects [exhaustion, pain, nausea, diabetes, depression etc.]  but am just about managing them all with a lot of drugs. My tumours appear to be frozen in time. They've hardly changed size for 3 or 4 yers and I haven't had any new ones for a year which is good. 

My life is pretty strange compared to 'normal' but it's good enough to keep going at the moment.

I've never heard of your meds, how long have you been on them?

M x

That’s sounds good to be stable x

I had only been on capecitabine for two weeks and the reaction prevented me from continuing. 

The ribociclib and letrazole I was on for 4 months and it did nothing at all except make me very tired. So now we are trying the paclitaxel, starting on 15th Feb so fingers crossed I will be back to stable. 

I can't take tamoxifen anymore as it stopped working after keeping me stable for 5 yrs. 

Here's hopefully the paclitaxel srinks the tumors enough to go back on hormone therapy.   

Hello my lovelies,  I started paclitaxel by IV today and as yet I have had very little side effects.  So fingers crossed this sorts me out and gets me back to a stable mable. 

I hope you are all doing well on your treatments.  ️

There will be fingers crossed everywhere on here for you!  Stable Mabel here you come!