Hi all. I've been having pain in my liver the last week or two. I know I have mets in my liver and have been put on letrazole and ribociclib to try and regain control. The thing is I'm getting more pain even though I have been on these drugs 3 months now. Any one else had the same effects and does this mean its not working?
Finding it difficult to concentrate on anything else at the moment, as the pain is sharp and then goes again and I find myself waiting for the next one so I'm prepared for it., bit it still makes me jump. It's like a stabby pain.
I hope the rest of you are all OK.
OK, I'm 1 week in with the chemo tablets Capecitabine, and so far not too many side effects. I'm hopeful that it will stay that way (touch wood) and praying this will work. The pain isn't too bad at the moment as am staying topped up on pain relief. I have been offered radiotherapy on my pelvis but have decided to wait and see, as last time my skin felt so hot and tight and very uncomfortable.I hope you are all doing well on your treatment and having a good new year.
Yes thank you I hope you and your wife are well.
Hi Lils, That's terrific you have little or no side effects from your drug. Pain management is a tricky business you have to stay on top of it. Leaving RT on the back burner seems the sensible thing to do at the moment, so you can give the drug a proper try! Keep on doing what you are doing, it seems to be working. Hope you had a great Festive Season! Ours was nice but quiet!
Love Annette x
That is great to hear you are doing well on the tablets Lily. I don’t blame you for putting off the radiotherapy. I had radiotherapy on my lungs, and although I had great results the side effects are not nice. Hopefully you won’t need it now you are on the tablets. Xx
Hi lily0403,
I was on capecitabine for a year until Dec. Main side effect for me was hand and foot syndrome - sore feet and hands - some amazing purple colouration and tide mark on feet. Weird. Make sure you moisturise feet and hands regularly if you notice it, E45 was cheap and effective. I also found that baths with loads of bath salts and a few drops of essential oil worked to reduce tightness and redness too. Hope you dont get it, but it is a known side effect. It never affected my wallking though, was just annoying and unsightly. Otherwise hope the drugs do the trick of holding everything for you.
x
ownedbystaffies Why did they take you off capecitabine?
I suffer with psoriasis so am used to dry and irritated skin, my oncologist is going to keep an eye on me incase it gets worse while on the treatment. I moisturise every day anyway so I'll just add more to the mix.
Thank you all for your continued support. I am going to get through this and be stable again. ️
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